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batemanhornecenter.bsky.social
Bateman Horne Center
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Science matters most when it becomes care.
See BHC's top ME/CFS & Long COVID research blogs of 2025 → https://bit.ly/4pTVse6
#BuildAccessNow
December 5, 2025 at 8:20 PM
Donate $175+ to Bateman Horne Center and we'll send a Clinical Care Guide directly to a provider of your choice (U.S. only). bit.ly/3KfdDvj
December 2, 2025 at 9:53 PM
It’s Giving Tuesday! We’re raising $500k to launch BHC’s Access to Care framework, bringing informed, compassionate care to patients everywhere.

Give $175+ to send a Clinical Care Guide to your provider, or give any amount to support the model: https://bit.ly/3KfdDvj

#BuildAccessNow
December 2, 2025 at 6:04 PM
The holidays can be overwhelming, you don’t have to navigate them alone.

BHC’s December online events offer a supportive space to talk through challenges, learn pacing strategies, and connect with others who truly understand.

💙 Register at https://bit.ly/4npZ4Ud
December 1, 2025 at 6:19 PM
Giving Tuesday is coming up soon. 💙

This year, we’re rallying our community to help expand access to informed, compassionate care for people with ME/CFS and Long COVID.

More details coming soon, stay tuned.
November 30, 2025 at 7:18 PM
Being a caregiver often means putting another person’s needs first. @emergeaustralia.bsky.social's Self-Care for Carers guide offers strategies to help protect and balance their own wellbeing.

🩵 Read it here 👉 https://bit.ly/47xsysl

#mecfs #caregiverawarenessmonth #unitedforme
November 28, 2025 at 9:19 PM
On this Thanksgiving, BHC is mindful of those living with ME/CFS, Long COVID, and related chronic conditions. You’re seen, and you’re held in our thoughts.
November 27, 2025 at 11:03 PM
When a loved one with #MECFS or #LongCOVID experiences a crash, knowing how to respond matters. 💙 Our Caregiver Guidance resource offers practical steps for safe, compassionate support during post-exertional malaise (PEM).

Read it now: https://bit.ly/44ZtO4R
#UnitedForME
November 25, 2025 at 7:16 PM
Too many have waited years for informed care. BHC’s Access to Care Model brings multidisciplinary evaluation, personalized plans, collaboration, and real support closer to home.

Learn more: https://bit.ly/3Xf1SIf
#BuildingAccessNow
November 24, 2025 at 6:21 PM
1 in 4 people with #MECFS are housebound or bedbound. 💙 @emergeaustralia.bsky.social’s evidence-based guide offers strategies for daily care, communication, & managing sensitivity, while protecting both patient & caregiver wellbeing.

Read more: https://bit.ly/4nD2Add
#UnitedForME
November 19, 2025 at 5:14 PM
Join us Tues, Nov 18 | 1 PM MST for BHC’s Online Support Group-
Acquainted with Grief: Growing through Ambiguous Loss

We’ll reflect on what we’ve lost, how we heal, and what helps us move forward.

Register now: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #ChronicIllness #IACCs
November 17, 2025 at 6:39 PM
"I came away from the conference feeling hope."
In a new blog, Dr. Bateman reflects on the #IACFSME2025 Conference, sharing about 40 years of research and progress. 
🔗 https://bit.ly/4hS9YjF
#MECFS #LongCOVID
November 14, 2025 at 5:19 PM
ME/CFS caregiving often requires navigating many logistics. Last year, we partnered with caregiver Galen Warden @galen2.bsky.social to share a practical guide covering medical proxy, disability, transport, clinic accommodations, and more: https://bit.ly/4hCSpDP
#CaregiverAwarenessMonth #UnitedForME
November 12, 2025 at 9:11 PM
☕ Join us Wed. Nov 12 at 10 AM MST for “Coffee” with a Clinician: Navigating Clinical Uncertainty Pt 2.

Hear patients, caregivers & clinicians share ways to bridge communication in complex care.

Free | $5 optional donation.
🔗 https://bit.ly/3JCHAFq

#MECFS #LongCOVID #IACCs
November 11, 2025 at 11:10 PM
Join us Tues, Nov 11 | 1 PM MST for BHC’s Online Support Group:
Denial, Resistance & Gaslighting — Coping with Others’ Unhelpful Reactions

Let’s talk about communication, boundaries & advocacy in chronic illness.

🔗 Learn more: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #IACCs
November 10, 2025 at 8:37 PM
Caring for someone with ME/CFS or Long COVID takes compassion & strength. 💙
This #CaregiverAwarenessMonth, we honor caregivers everywhere, and highlight @emergeaustralia.bsky.social's  Carer Resource Hub, a valuable guide to those who give so much: https://bit.ly/4nzChVk

#MECFS #LongCOVID
November 6, 2025 at 5:36 PM
This November, for National Family Caregivers Month, we’re joining forces with @solveme.bsky.social, @openmedf.bsky.social & @meactnet.bsky.social to highlight caregiver resources, events & support.

Together, we’re stronger, and united in care. 💙
Follow and share using #UnitedForME
November 5, 2025 at 5:48 PM
Join BHC’s November events on gaslighting, grief & uncertainty:
💙 Nov 11 | Denial & Resistance
☕ Nov 12 | Navigating Uncertainty: Part 2
💙 Nov 18 | Acquainted with Grief

🔗 https://batemanhornecenter.org/events
#MECFS #LongCOVID
November 3, 2025 at 6:33 PM
October is POTS Awareness Month, a time to spotlight BHC resources. Our Clinical Care Guide includes a full chapter on orthostatic intolerance (OI) & dysautonomia, core features of #POTS.
Download ➡️ https://batemanhornecenter.org/clinical-care-guide/ (navigate to chapter 7 for info on POTS & OI)
November 1, 2025 at 12:11 AM
It’s POTS Awareness Month!
#OrthostaticIntolerance (OI) includes #POTS, orthostatic hypotension & more. Our OI Overview covers evaluation (Passive Standing Test, EKG), lifestyle approaches, meds, and further resources.
🔗 https://bit.ly/4pCeOoA
#POTSAwarenessMonth #Dysautonomia #MERC
October 29, 2025 at 5:23 PM
Exciting News!
Dr. Melanie Hoppers will be an expert panelist at the first-ever Infection-Associated Chronic Conditions (IACC) Case Competition hosted by the @umisr.bsky.social 
A major step toward innovation in #LongCOVID, #MECFS & #POTS care.

Learn more: https://bit.ly/3KXI3T7
#IACC2025
October 27, 2025 at 3:02 PM
Today is POTS Awareness Day.

We’re raising visibility for POTS and orthostatic intolerance (OI), common in ME/CFS and Long COVID.

Look back at this month’s posts & next week for more.

#POTSAwarenessDay #POTS #MECFS #LongCOVID #OI
October 25, 2025 at 3:57 PM
Following high community interest, we’ve published a deeper look at the Oxaloacetate (OAA) study in ME/CFS.
Learn how targeting cellular energy may support both fatigue and cognition.

🔗 Read the full blog: https://bit.ly/4opeqbw
#MECFS #Oxaloacetate #Research #BatemanHorneCenter
October 24, 2025 at 9:22 PM
The Fall 2025 BHC Newsletter is out!

Highlights: 10 years of BHC, new research insights, “Coffee with a Clinician,” and our Platinum Transparency Seal.

📖 Read now: https://bit.ly/4onikSe
#MECFS #LongCOVID #BatemanHorneCenter
October 21, 2025 at 2:33 PM
Oct 21 | 1:00 pm MDT
Support Group: Parenting w/ Chronic Illness 💙

We’ll share challenges, strengths, & what we hope our kids learn as they watch us face disease.

Free & open to all → https://bit.ly/4nJnk3o

#MECFS #LongCOVID #Parenting #SupportGroups
October 20, 2025 at 5:02 PM