Andreas Longva
andlon.bsky.social
Andreas Longva
@andlon.bsky.social
Researcher and PhD candidate @ RWTH Aachen University. I work in the intersection between math, physics and software. Simulating the macroscopic world 🌍🦀

andreaslongva.com
Ich stimme dir absolut zu, dass er tatsächlich viel besser ist als die meisten anderen Fragebögen!

Ich fand es nur überraschend, dass es dennoch so offensichtlich uneindeutige Fragen gibt …
November 23, 2025 at 11:52 AM
Was ich meine, ist, dass 100 m und 1 km zwei komplett unterschiedliche Antworten ergeben können. Wie soll man es also beantworten, wenn man das Intervall von 100–1000 m auf einmal bewerten soll?
November 23, 2025 at 11:20 AM
Jesus, that README is amazing! Very thoughtfully put together.
November 23, 2025 at 11:07 AM
if you can walk 100m without too much problems, but have no chance at 1km?

Questionnaires are hard I guess!

(Feel free to ignore me, I just ended up looking at Funcap since it was mentioned in the thread you quoted)
November 23, 2025 at 10:13 AM
Totally tangential, but considering all the work that went into Funcap55, I'm surprised to see questions like these:

10-Walking between approx. 100m and 1km on level ground (length of 1 to 10 football fields)

There's a 10x difference between the low and high end! How do you even answer that ...
November 23, 2025 at 10:13 AM
What's even a realistic alternative to .expect in many cases? You'd have to go so far out of your way to avoid that you'll likely be introducing new bugs through sheer complexity.
November 19, 2025 at 2:32 PM
står i intellektuell spagat for å forsvare hva de gjør. De saboterer jo regelrett den sannhetssøkende forskningen. Det er så trist.

Men det trenger jeg jo ikke fortelle deg, det vet du selvfølgelig bedre enn de aller, aller fleste!
November 19, 2025 at 9:09 AM
bevisst å innføre positive forventninger om PRT i befolkningen, bl.a. for å veie opp for eventuelle negative forventninger fra pasientforeningene.

Nå som alle vet hva PRT er kan man jo bare glemme alle tilnærminger til placebo-kontrollerte studier. Det er nesten imponerende hvordan hun

...
November 19, 2025 at 9:09 AM
Uff. Den artikkelen i Nettavisen er fullstendig blottet for kritisk. journalistikk. Det er så mange implisitte antagelser i Remes uttalelser som ikke blir gått etter i sømmene.

Jeg hørte episoden "Debrief etter Harald og sytepavene" i MindBody-podden her forleden. Der sier Reme at de forsøker ...
November 19, 2025 at 9:09 AM
Takk for at du deler, dette illustrerer veldig godt noen av de praktiske konsekvensene som du var inne på i diskusjonen om PRT vi hadde for litt siden.

Utrolig trist at behandlingstilbudet til disse pasientene blir lagt ned!
November 18, 2025 at 9:06 PM
Fair enough, though you gotta have some serious cognitive dissonance if you're able to sit there and be fooled by the shiny rockets and robots while Musk is pushing a fascist agenda across several continents
November 17, 2025 at 2:31 PM
I guess I think of "techno-positive" as technology benefitting all, not technological progress regardless of cost
November 17, 2025 at 2:26 PM
Heck, it's not even positive for the robots, slaving about in people's households
November 17, 2025 at 2:19 PM
A positive version of the future after gutting USAID and causing the deaths of tens or hundreds of thousands of children?

Positive for who? What is positive about humans on Mars when he's killing humans on Earth?

I don't understand how anyone can think Musk has a positive vision
November 17, 2025 at 2:17 PM
Jeg er så lei av å se Aavitsland bortforklare ALT! Når kastet vi føre-var-prinsippet på havet når det kommer til folkehelse?
November 17, 2025 at 1:18 PM
Here you go, I used AI to extract the English text and went over it. It's possible it's not a perfect transcription but I didn't see any obvious errors.

Bluesky character limit makes it awkward, I've uploaded it to pastebin.com does that work for you?

Raw text:

pastebin.com/raw/Mrg7TbyB
Pastebin.com - #1 paste tool since 2002!
Pastebin.com is the number one paste tool since 2002. Pastebin is a website where you can store text online for a set period of time.
pastebin.com
November 17, 2025 at 12:45 PM
Here you go, I used AI to extract the English text and went over it. It's possible it's not a perfect transcription but I didn't see any obvious errors.

Bluesky character limit makes it awkward, I've uploaded it to pastebin.com does that work for you?

Raw text:

pastebin.com/raw/Mrg7TbyB
Pastebin.com - #1 paste tool since 2002!
Pastebin.com is the number one paste tool since 2002. Pastebin is a website where you can store text online for a set period of time.
pastebin.com
November 17, 2025 at 12:43 PM
You don't think desperate patients have tried just about anything to get better, including various forms of brain retraining programs? There's a very simple reason why people are still sick: it just doesn't work for most.

In any case, this discussion has strayed, and I'm gonna leave it here
November 16, 2025 at 8:59 PM
And to be clear, nobody has an issue with mental health treatment for ME/CFS patients. Mental health and physical health are indeed closely linked. But ME/CFS is not a mental health condition, as evidenced by the existence of patients with no mental health issues.
November 16, 2025 at 6:08 PM
I'm confused. What makes you think people are "waiting"? In fact, they're often forced to undergo CBT or even GET to not risk losing disability pensions, as non-participation is often interpreted as non-compliance.
November 16, 2025 at 6:04 PM
Exactly, which is why small improvements can be explained by improvements in mental health. It doesn't give any credence to the hypothesis that ME/CFS is a neuroplastic/psychosomatic condition.
November 16, 2025 at 5:38 PM
You don't see any problems with that completely ad-hoc, vague questionnaire (Table 5)? Who knows how patients interpret this. It's almost worthless.

PF 30->40 is still very ill, and doesn't take into account placebo+response bias.
November 16, 2025 at 5:36 PM