Tilman Andris
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tilmanandris.bsky.social
Tilman Andris
@tilmanandris.bsky.social
1.9K followers 1.1K following 97 posts
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
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Liebe Bettina Grande,
vielen herzlichen Dank für Ihre ausführliche Antwort! Das ist wirklich unglaublich freundlich und hilfreich.
Falls Sie dazu Gelegenheit haben, wäre ich Ihnen sehr dankbar, wenn Sie noch einmal erläutern könnten, wie sich Ihre Verwendung des Codes zur Umschreibung im ICD-10 selbst verhält.
Für mich als Laien-Leser stehen beide im direkten Widerspruch zueinander. Offensichtlich verstehe ich etwas falsch.

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Aber das scheint genau was der Code in Kombination mit Hauptdiagnose ME/CFS aussagt!?

Auf Science for ME wird das Thema gerade von Patienten und Ärzten diskutiert:
www.s4me.info/threads/what...
(Account und Login erforderlich)

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www.s4me.info
Führt dieser Code nicht doch zu weiteren Missverständnissen? Ich hätte Schwierigkeiten damit, wenn bescheinigt würde, dass bei mir psychologische Einflüsse 'eine bestimmende Rolle in der Verursachung von ME/CFS' gehabt hätten.

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Und das Portal des BMG fasst den Code zusammen als: "Sie haben körperliche Beschwerden, die durch psychische Vorgänge mit beeinflusst worden sind."

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"This category should be used to record the presence of psychological or behavioural influences thought to have played a major part in the aetiology of physical disorders which can be classified to other chapters."

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Liebe Frau Grande,
vielen Dank für diesen Hinsweis. Ich hatte mir das damals notiert. Jetzt lese ich aber im ICD-10-Browser zu diesem Code:

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Hope you’ll feel better soon. And Bristol uni should do better…
Reposted by Tilman Andris
If you're reading this and thinking "nuh-uh, I'm totally a real trans ally", that's great! What was the last bit of active allyship you did? If it's been a while, I made this little doc of options for easy allyship to help you get started: docs.google.com/document/u/0...
Actions for Trans Allies
Actions For Allies With increasing transphobia in the media and politics, being trans is getting more dangerous every day. Trans people’s access to public spaces, services, and healthcare are being re...
docs.google.com
Reposted by Tilman Andris
After a lifetime with M.E. with her childhood, teenage years, & 20’s taken from her, Nevra didn’t want to reach 30 unless there was a cure or some improvement. This is an intensely traumatic milestone for Nevra.
All funds raised by this raffle will go towards safe housing, carers, & medical treatment for our dear friend, & will ensure she doesn’t have to return to a DV situation. Thank you for your support ❤️ #MutualAid #pwME
#SevereMECFS #SevereME #DomesticViolence #Birthday #MillionsMissing #SolarReturn
That IS an important question.

It does look like water will be raining down on your head at the very least.

I am sorry, I will have to let this topic go for today.
I acknowledge its importance though.
“Osaka Governor Hirofumi Yoshimura was the first to try the machine during the preview. Initially nervous, he emerged from the pod visibly refreshed, calling the experience smooth, gentle, and ‘the bath of the future.’”

Sorry, I still have no information on how to import it into the UK for you.
“Developed by Osaka-based company Science Co., Ltd., the device is a modern reimagining of the original “human washing machine” exhibited at Expo ’70.”
“Unveiled for the first time during a preview event in late March, the innovative bathing pod blends Japanese bathing culture with cutting-edge fine bubble technology, promising to cleanse not only the body but also the mind.”

en.japantravel.com/news/human-w...
“It was developed by Science.”
They have:
youtu.be/AfNrAIITDi0?...

Other tired people are discussing it here:
www.reddit.com/r/cfs/commen...

There is no spin cycle.
youtu.be
unevidenced treatments.
Sadly, at this point, there is little doctors can do to help and it’s best to be weary of those claiming otherwise. The NICE guidance gives a good overview of what little knowledge can be relied on.

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If you are interested in research being done on ME/CFS, you can do no better than join the @scienceforme.bsky.social internet forums, where scientists and patients discuss every aspect of the illness. It will also save you a lot of time and money you might otherwise spend on
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Reposted by Tilman Andris
Thank you for your response to our initial DNA results last week. We have been blown away by all your messages, support and kind words 🙏
Reposted by Tilman Andris
'Our societal bias that exercise can only ever heal, never harm, is incredibly pervasive. It is playing out right now in how we understand and discuss #LongCovid, and as we have done in relation to #MEcfs for decades.'
May be one of main reasons why no further in finding a cure for those conditions
BJGPLife: What does the fallout from the ‘Salt Path’ saga tell us about our society’s ideas about chronic illness and exercise?
bjgplife.com/what-do...

#GeneralPractice #PrimaryCare #FamilyMedicine
Reposted by Tilman Andris
Reposted by Tilman Andris
Offener Brief an Prof. Berlit
Generalsekretär der @dgn-ev.bsky.social - Auszüge

"Das Bild von ME/CFS-Betroffenen, das die Stellungnahme der DGN und Ihr Interview zeichnen, hat kaum etwas mit der Realität zu tun, die wir täglich erleben.
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#DGN
Reposted by Tilman Andris
Es gibt unter Menschen, die nicht von ME/CFS oder anderen marginalisierten Krankheiten betroffen sind, eine weitverbreitete Illusion: Dass wir in einem Sozialstaat leben, in dem alle Kranken zumindest eine grundlegende auf sie zugeschnittene medizinische Versorgung erhalten. 🧵