Author | Lightnews

Patvocates @patvocates.bsky.social · 2d

The #Patvocates team joined Merck Healthcare’s Patient 360 Summit in Boston. Jan Geissler led a live session on global #PatientEngagement challenges; Mariel Thottam shared a framework for earlier, more systematic involvement. Thanks to all who made it happen! #HealthEquity #Policy #MerckHealthcare

Patvocates @patvocates.bsky.social · 10d

Our Patvocates #team in action at #GMCS25 🤩

Patvocates @patvocates.bsky.social · 10d

The #GMCS25, hosted by @boehringerglobal.bsky.social, brought together 60+ advocates, carers & community leaders worldwide to advance #MentalHealth collaboration. Patvocates is pleased to have supported this inclusive, purpose-driven summit.
Photo credits: Boehringer Ingelheim & Patvocates

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Patvocates @patvocates.bsky.social · 10d

New white paper explores how Europe can keep pace with #tumouragnostic innovation in #cancer care. Featuring insights from JanGeissler of Patvocates and other experts. Read more: tumouragnosticeurope.com/At_the_cross...
#CancerInnovation #PrecisionOncology

Patvocates @patvocates.bsky.social · 18d

At the #MSDGesundheitsforum2025 in Munich, our CEO Jan Geissler served as a jury member and delivered a 𝘭𝘢𝘶𝘥𝘢𝘵𝘪𝘰 for the Special Award in Prevention, presented to the “Vaccination Record Check” project. An inspiring occasion for innovation & prevention in healthcare. 🤝

#Prevention #FutureOfHealth

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Patvocates @patvocates.bsky.social · 24d

Today marks a key step in the Principles of Care for CIDP project. In Berlin, patient advocates came together to help shape a patient-centred care pathway. 𝗣𝗮𝘁𝘃𝗼𝗰𝗮𝘁𝗲𝘀 is proud to support this initiative with 𝗚𝗕𝗦|𝗖𝗜𝗗𝗣 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻 𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 and 𝗘𝗣𝗢𝗗𝗜𝗡. #CIDP #PatientVoices #CIDP

Reposted by Patvocates

European Patient Advocacy Institute @advocacyeu.bsky.social · 25d

📢 Don’t miss out! Register now for our 16 Oct webinar on the #PatientPathwayToolkit — a practical resource to map care, spot barriers & plan #advocacy.
🔗 Sign up here: bit.ly/patientpathw...
#Webinar #PatientAdvocacy #EPAI

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Patvocates @patvocates.bsky.social · 24d

𝟭.𝟴 𝗯𝗶𝗹𝗹𝗶𝗼𝗻 𝗽𝗲𝗼𝗽𝗹𝗲 live with skin diseases worldwide, yet these conditions remain under-prioritised. Last month, we supported the #GlobalSkin Health Policy Influencers Forum in Paris, helping advocates shape strategies to drive policy change for better skin health. 💪 #PatientAdvocacy #Dermatology

Patvocates @patvocates.bsky.social · 25d

A week after #ERSCongress in Amsterdam, Rachel Giles and Marieke Heisen reflect on inspiring exchanges with the respiratory community and new opportunities for collaboration in lung health. Thanks to all who connected with them! #LungHealth #PatientEngagement #Patvocates

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Patvocates @patvocates.bsky.social · 26d

Patient voices matter. During #ServierPatientWeek in Paris, advocates from different countries came together last week to exchange insights and help shape better care in cardiometabolic & venous diseases #CMVD. Proud to support this collaboration with Servier. #PatientEngagement #Patvocates

Patvocates @patvocates.bsky.social · Sep 25

Excited to share that our Patient Engagement Director, Rachel Giles, co-authored a Cancer Treatment Reviews article on overcoming barriers for #RareCancers in the era of #PrecisionOncology. 📄 Read here: www.cancertreatmentreviews.com/article/S030...

Reposted by Patvocates

European Patient Advocacy Institute @advocacyeu.bsky.social · Sep 23

💬 The #PatientPathwayToolkit was co-created with patient orgs & experts. Thank you to all who shaped it with your insights and support! 👏 👏 👏 @advocacyeu.bsky.social sky.social @patvocates.bsky.social @boehringerglobal.bsky.social
🔗 The toolkit: bit.ly/48bilnr
#PatientVoices #PatientPathway

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Patvocates @patvocates.bsky.social · Sep 19

Leaps, smiles + serious discussions in Munich 🪂 Our patient engagement experts came together to discuss challenges & strengthen initiatives so patient voices shape research, policy & care. #TeamTraditions

Reposted by Patvocates

European Patient Advocacy Institute @advocacyeu.bsky.social · Sep 16

🎬 New short video guide: Learn how the #PatientPathwayToolkit helps map care & identify barriers.
✔ What’s inside
✔ How to use it
✔ Where to access it
📽️ Watch now at the Toolkit resource page: bit.ly/48bilnr
#AdvocacyTools #PatientLedChange #EPAI #Patvocates #BoehringerIngelheim

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Reposted by Patvocates

European Patient Advocacy Institute @advocacyeu.bsky.social · Sep 11

🗓️ Join our #webinar on the #PatientPathwayToolkit — a visual resource to help #patient orgs & #engagement pros map care & plan #advocacy.
🕒16 Oct, 14:00 CET
🔗Register: bit.ly/patientpathw...
✅Miro account (free plan option available) needed to access materials: miro.com/signup/
#PatientPathway

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Reposted by Patvocates

European Patient Advocacy Institute @advocacyeu.bsky.social · Sep 11

🎉 𝗡𝗲𝘄: 𝗧𝗵𝗲 𝗣𝗮𝘁𝗶𝗲𝗻𝘁 𝗣𝗮𝘁𝗵𝘄𝗮𝘆 𝗧𝗼𝗼𝗹𝗸𝗶𝘁
A co-created resource to help #patient orgs map care, identify barriers & plan effective #advocacy. Hosted by @advocacyeu.bsky.social & developed by @patvocates.bsky.social, with the support of @boehringerglobal.bsky.social
🧰 Access the #toolkit: bit.ly/4m9bCOg/

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Patvocates @patvocates.bsky.social · Aug 1

Whether you're recharging by the sea or taking a well-earned break closer to home, we hope this season brings you space to reflect, recharge and remain inspired🏖 #SummerWishes

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Patvocates @patvocates.bsky.social · Jul 11

At Johnson & Johnson's MAFinity event, our CEO Jan Geissler shared why patient engagement must be everyone’s responsibility. It takes more than frameworks — it takes action. Grateful to exchange with changemakers driving deep patient engagement. #PatientEngagement #MedicalAffairs

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Patvocates @patvocates.bsky.social · Jul 3

Pleased to share that Jan Geissler, CEO of Patvocates, co-authored an article in the Springer Journal "𝗧𝗵𝗲 𝗣𝗮𝘁𝗶𝗲𝗻𝘁 – 𝗣𝗮𝘁𝗶𝗲𝗻𝘁-𝗖𝗲𝗻𝘁𝗲𝗿𝗲𝗱 𝗢𝘂𝘁𝗰𝗼𝗺𝗲𝘀 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵" on 7 actions to advance #PatientAuthors & #PatientPartnership in research.
🔗 link.springer.com/article/10.1...
🖼️ Image: Article visual abstract

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Patvocates @patvocates.bsky.social · May 20

On #InternationalClinicalTrialsDay, we honour #Patients in research. Our founder and leukaemia survivor Jan Geissler joined a trial that saved his life. At #Patvocates, we call for inclusive trials shaped with patients—because #PatientVoices are essential for better outcomes in #ClinicalResearch.

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Patvocates @patvocates.bsky.social · May 16

Proud to share that our CEO Jan Geissler co-authored an article in Nature Reviews Bioengineering on advancing #PatientEngagement through patient communities. Read it here: rdcu.be/ekhhn

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Patvocates @patvocates.bsky.social · May 14

At the 6th EORTC QoL in Cancer Trials Conference, Jan Geissler spoke on the role of patient-reported outcomes (PROs), patient-reported toxicity and preferences, sharing WECAN's EuroACT data: only 1/5 of 24,797 trials measured PROs, <2% published data. We must do better. #PatientEngagement #PROs

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Patvocates @patvocates.bsky.social · May 13

#PatientEngagement #Innovation #FreshIdeas #MissionDriven #Strategy

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Patvocates @patvocates.bsky.social · May 13

Last week near Girona, Spain, our #Patvocates and #EPAI @advocacyeu.bsky.social teams came together from across Europe for a #Retreat to refine #Strategy & explore new opportunities. 4 days of #Collaboration, #Creativity & even karaoke left us energised to drive the future of patient engagement!

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Patvocates @patvocates.bsky.social · May 2

The EU-PFF Patient Advocacy Forum #PFForum25 gathered advocates, experts & partners in Frankfurt from 24–27 April to strengthen the patient voice in #PulmonaryFibrosis. Patvocates is proud to have supported the forum which focused on collaboration & advocacy. #PatientAdvocacy #LungHealth #EUPFF

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