knitteng.bsky.social
@knitteng.bsky.social
This. Read this and take it to heart. You know someone with Long Covid and they justifiably feel abandoned.
“The problem with Long COVID is that most of society would rather not see it.”

@philipandrewhoover.bsky.social writes that he often feels that he’s living a double life. How can this sick side of him be so central, so enormous, yet so unseen by those who know and love him? bit.ly/4pf80g7
December 1, 2025 at 6:58 PM
Reposted
No more pretense or excuses. Trump and his team have made the white supremacist foundations of this project explicit and clear.

If you enable this you need to face who and what you are. But you can always choose another way.

Choose humanity. Decency. Equality. Democracy.
To make common cause with this Administration is to support an affirmatively white supremacist vision of this country. Period.

Every corporation.
Every Republican.
Every influencer.
Every Governor.
Every evangelical leader.
Every voter. Yes. Every voter.
Mark Kelly: "This president, when he says things like 'third world countries,' what is he really saying? I think what he's saying is he doesn't want brown people in our country. And that's disturbing. It's un-American."
November 30, 2025 at 6:03 PM
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The #LongCOVID crisis is accelerating while the national response collapses. Your support strengthens the national infrastructure families urgently need.

Donate or start a fundraiser: https://bit.ly/FR4LC26
#GivingTuesday #PublicHealthMatters
December 1, 2025 at 2:02 PM
Reposted
When tens of thousands of Kansas City residents take to the roads and skies this holiday season, they will unknowingly spread germs as they go. That’s where the Kansas City mutual aid group 816 COVID Crew comes in — by helping provide free, high-quality masks to the public.
Holiday travel brings higher risk of infection. A Kansas City group is helping people mask up
The Kansas City Aviation Department expects nearly 400,000 people through the airport during Thanksgiving week, meaning an increased chance of local infections. One local group is helping travelers take proper precautions.
www.kcur.org
November 26, 2025 at 3:05 PM
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For up to half of people with #LongCOVID, activities like exercise can trigger post-exertional malaise (PEM). Yet Long COVID clinics around the world are offering exercise as treatment while dismissing its serious harms.

Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
November 24, 2025 at 4:48 PM
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Today @thesicktimes.org: big story from @spichaksimon.bsky.social examining exercise trials for Long COVID. His analysis found that, among LC exercise trials registered on clinicaltrials.gov, less than 20% even *mention* PEM in their trial registration. thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 3:02 PM
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CDC time of death: November 19th, around 9:30pm EST.

This is political chess. And last night, they cornered our king.
This Isn’t Checkmate
Reflections from the morning after RFK’s CDC changed its vaccine-autism webpage
open.substack.com
November 20, 2025 at 8:38 PM
Reposted
Did you know that trans people are more likely to report having Long COVID than cis people are?

On this annual Transgender Day of Resilience (TDOR), we’re sharing our resource on Long COVID in trans people.

Created with @longcovidjustice.org

longcovidjustice.org/lc-in-trans-people
November 20, 2025 at 2:14 PM
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Groundbreaking research suggests that food allergies might actually begin with the skin, not the stomach. Those messy meals, the drool rashes, the eczema patches that so many babies develop—they could be secret doorways for creating lifelong allergies.
Plot Twist: Food Allergies Might Not Start with Food
Skin as Ground Zero: How a Broken Barrier Sparks Food Allergies
open.substack.com
November 19, 2025 at 9:08 PM
Reposted
Leading #LongCOVID and related disease researchers presented updates to their work Friday at the PolyBio Research Foundation’s Fall 2025 Symposium. As always, we live blogged the event. Check out summaries of each talk: bit.ly/4o38Gne
November 19, 2025 at 7:22 PM
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Enhanced credits for health insurance purchased from the Affordable Care Act marketplace expire at the end of this year. If they aren’t renewed, premiums will skyrocket for many people in Kansas and nationwide.
This Kansas diner owner says she’ll have to go without health insurance if federal subsidies end
Enhanced credits for health insurance purchased from the Affordable Care Act marketplace expire at the end of this year. If they aren’t renewed, premiums will skyrocket for many people in Kansas and nationwide.
www.kcur.org
November 19, 2025 at 3:30 PM
Thrift, buy secondhand, support small/local businesses when you can, attend clothing/toy swaps, shop the library book sales, make gifts, get a bottle from the local vineyard/brewery/distillery... Don't buy into the corporate greed, esp when the corporations are enabling this administration.
November 18, 2025 at 3:39 PM
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Picture this: You’re reaching for the green beans at Thanksgiving when Aunt Sue gasps, “Don’t eat those! They’re cooked in SEED OILS!”

Your cousin chimes in about how measles is actually good for kids & someone just called the COVID vaccine “experimental gene therapy.” Pass the wine.
A Survival Guide for Thanksgiving Dinner Conversations About Health and Science
Pass the Potatoes, Hold the Panic
open.substack.com
November 17, 2025 at 1:24 PM
That's our family, especially after the kids watched an episode of Nature Cat on that topic. Let the leaves be!
While it feels like common practice to rake leaves and remove them from lawns, there’s a growing movement of people who are treating leaves more like essential habitat for local species rather than a waste product.
Put your rake down! Fallen leaves are healthy for soil and wildlife
Scientists say leaving autumn leaves on the ground can add important nutrients to the soil and create needed habitat for insects.
www.kcur.org
November 14, 2025 at 8:27 PM
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🤝 This is what true public health partnership looks like- collaboration between organizations and the community to protect and inform the public.
2/4
November 12, 2025 at 4:13 PM
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The COVID-19 Longhauler Advocacy Project is proud to have donated high-quality N95 masks to the DC Public Health Association (DCPHA)!

After learning more about #LongCOVID, DCPHA will be partnering with us to continue working to raise awareness leading up to Long COVID Awareness Day in March.
1/4
November 12, 2025 at 4:13 PM
Reposted
The Sick Times: “Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved”

By Chelsea Rudman

People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care

thesicktimes.org/2025/11/11/l...
Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved - The Sick Times
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care.
thesicktimes.org
November 11, 2025 at 7:51 PM
Reposted
Libraries host food drives, have reading challenges with certificates for free burgers & pizza to encourage kids to read, have lunch-at-the-library programs in the Summer, have seed lending libraries to help grow your own food…

Libraries are adamant our neighbors be fed, that they never go hungry 💛
November 12, 2025 at 2:26 PM
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Wow, a Long Island jury awarded $112 Million to 674 immigrants who were unlawfully held by county police so they could be handed over to ICE
Federal jury awards $112M to immigrants detained by Suffolk for ICE
A federal jury found the county and the Sheriff's Office violated the Constitutional rights of 674 people.
longisland.news12.com
November 11, 2025 at 8:58 PM
Reposted
Shutdown battle ebbs, but Trump won’t give up trying to withhold full SNAP benefits | via @fischler.bsky.social #ksleg
Shutdown battle ebbs, but Trump won’t give up trying to withhold full SNAP benefits • Kansas Reflector
The Trump administration continued Monday to press the U.S. Supreme Court to overturn lower court decisions requiring the federal government pay for full benefits for a major food program, even as Con...
kansasreflector.com
November 11, 2025 at 5:13 AM
"In America today, 42 million souls rely on SNAP benefits — some 1 in 8 U.S. residents... Poverty has a thousand faces. Your neighbor... The medical resident... Your barber, mailman, Amazon delivery person... your old friend, working furiously to keep up appearances."
www.wbur.org/cognoscenti/...
Someone you know relies on SNAP. They just don't talk about it
Two years before she went on public assistance, Joanna Rakoff had a best-selling novel that won literary awards. She presented like a middle class working mom. But in reality, she was struggling — wor...
www.wbur.org
November 10, 2025 at 10:40 PM
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THIS IS AMAZING. ALSO WHAT, IF ANYTHING, DID WE FORGET TO RUIN?
A List of Things Said to Have Been Ruined by Women

🧵
November 6, 2025 at 9:19 PM
Tick-tock-tick-tock... I'm eager to heel these socks, but I can't till 8 p.m... ⏳ 🧶
www.ravelry.com/patterns/lib...
Seafarer Stripey Crew Sock pattern by The Seamen's Church Institute
Size:
www.ravelry.com
November 6, 2025 at 6:20 PM