CSF Leak Association
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csfleak.bsky.social
CSF Leak Association
@csfleak.bsky.social
The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks, support sufferers and their families, and secure diagnostic and treatment advancement. csfleak.uk
🚨 We're excited to announce our seventh speaker, Dr. Ayman Qureshi, consultant neuro radiologist at NHNN. Join to learn about blood patching techniques for spinal CSF leaks. Register 👉🏻 csfleak.uk/event/webina...
#CSFLeakAssociation #CSFleaks
May 16, 2025 at 12:25 PM
🚨 ONE WEEK TO GO! Join us on 12th April at 2 PM as Mr Parag Sayal shares expertise on surgical options for managing CSF leaks. Still time to register 👉🏻 csfleak.uk/event/webina...
#CSFLeakAssociation #CSFleak
April 5, 2025 at 8:54 AM
🚨 We're excited to announce our fifth speaker, Mr Parag Sayal, clinical lead for spinal neurosurgery at NHNN London. Join to learn about surgery options for managing CSF leaks. Register 👉🏻 tinyurl.com/bdhjtatv
#CSFLeakAssociation #CSFleak
March 18, 2025 at 6:38 PM
💜 This #InternationalWomensDay, we celebrate our incredible female leakers, trustees, volunteers and supporters! Your strength, resilience and dedication inspire us daily and drive our mission forward. Thank you! #CSFLeakAssociation #IWD2025 #WomenInHealth
March 8, 2025 at 6:38 AM
📺 AVAILABLE NOW! Webinars 2 and 3 in our CSF leak series are available on demand. Catch up on 'Assessment & Diagnosis' and 'Imaging' on our website or YouTube channel. Watch here 👉🏻 csfleak.uk/webinars
#CSFLeakAssociation #CSFleak
Webinars
Our new CSFLeak webinar series with some of the UK’s leading experts in the field, who will generously share their insights and answer your questions.
csfleak.uk
March 1, 2025 at 6:58 PM
🚨 ONE WEEK TO GO! Join us on 8th March at 3 PM as Dr. Patrick Nicholson shares expertise on procedures for managing CSF leaks, including epidural blood patches. Still time to register 👉🏻 tinyurl.com/yh3u92e3 #CSFLeakAssociation #CSFleak
March 1, 2025 at 10:42 AM
🚨 We're excited to announce our fourth speaker, Dr. Patrick Nicholson, Neurointerventional Radiology Consultant with over 100 published papers. Join to learn about procedures for managing CSF leaks, including epidural blood patches. Register 👉🏻 tinyurl.com/yh3u92e3
#CSFLeakAssociation #CSFleak
February 21, 2025 at 12:01 PM
🎯 Making waves at #BASH2025! Our trustee Bern connected with 300+ healthcare professionals on CSF leaks, alongside Dr Sanjay Cheema's expert presentation.
Huge thanks to Bern for 3 days of tireless advocacy! 💪
#CSFLeaks #SIH #standupforcsfleakers #CSFLeakAssociation
January 26, 2025 at 5:26 PM
🚨 We're excited to announce our third speaker, Dr Indran Davagnanam, Consultant Neuroradiologist at NHNN. Join to learn about imaging techniques for CSF leak diagnosis and management. Register 👉🏻 tinyurl.com/5n8sunbz

#CSFLeakAssociation #CSFleak
January 18, 2025 at 8:14 PM
🏛️ We're supporting The Neurological Alliance at Parliament on 16 January to advocate for better care and support for people with CSF leaks and other neurological conditions. 📝 Invite your MP to attend tinyurl.com/ParliNeuroRe...
#backthe1in6 #csfleak #csfleakassociation #NeurologicalAlliance
Invite your MP to meet us
Invite your MP to meet the Neurological Alliance in Parliament
tinyurl.com
January 9, 2025 at 1:20 PM
🚨 LESS THAN A WEEK TO GO! 🚨

Dr Brendan Davies, consultant neurologist and co-author of both NICE headache guidelines and SIH consensus guidelines, will explore clinical assessment and differential diagnosis of CSF leaks, helping to demystify the diagnostic journey.
Register now tinyurl.com/5yk932pc
January 5, 2025 at 2:46 PM
🎄 ✨ Sending warm wishes to our global CSF leak community this Christmas and holiday season. 🌟

To patients, carers, medical teams and supporters worldwide - thank you for your incredible support throughout 2024 💚 🙏 🌍
#CSFLeakAssociation #CSFleak
December 25, 2024 at 9:43 AM
📺 Missed our first webinar on spontaneous CSF leaks with Dr Sanjay Cheema? It's now available to watch on demand on our website 👉🏻 csfleak.uk/webinars
#CSFLeakAssociation #CSFleak #SIH
December 19, 2024 at 12:02 PM
🚨 We're excited to announce our second speaker, Dr Brendan Davies, consultant neurologist and guideline co-author. Join to learn about clinical assessment and diagnosis of CSF leaks.
Register 👉🏻 tinyurl.com/5yk932pc
December 17, 2024 at 6:47 PM
We're proud to #BackThe1in6!

The government is launching the first ever forum to address gaps in treatment, care and support for people affected by neurological conditions.

Learn more about this landmark initiative👇🏻
shorturl.at/O2mLq
November 30, 2024 at 8:05 PM
🚨 JUST 1️⃣ WEEK TO GO! 🚨

For our first monthly webinar, Dr. Sanjay Cheema will give an overview of the condition, an overview of the guidelines, and answer your questions live.

Who's joining us? 🙋🏻‍♂️🙋🏽‍♀️👇🏻

tinyurl.com/5yk932pc
November 30, 2024 at 7:53 PM
And our Canadian friends @spinalcsfleakca.bsky.social
November 24, 2024 at 7:59 PM
Follow our US friends @spinalcsfleak.bsky.social 🙏🏻
November 24, 2024 at 2:25 PM
Hello Bluesky🦋 We're the CSF Leak Association, a registered charity in the UK working to raise awareness of CSF leaks, to provide support to sufferers and their families, and to secure diagnostic and treatment advancement.

Visit our csfleak.uk to find out more!
November 24, 2024 at 2:06 PM