Sam
@counsellingsam.bsky.social
Person with #LongCovid for 4 and a half years.
Disability Campaigner and dog lover. Left-wing.
Hates Centrists for pandering to the Right.
Leveson 2 Now. Anti-Zionist. Anti-Racist pro-Trans
Disability Campaigner and dog lover. Left-wing.
Hates Centrists for pandering to the Right.
Leveson 2 Now. Anti-Zionist. Anti-Racist pro-Trans
Reposted by Sam
People around me describing brain fog, memory issues and "I just got into jogging again, why am I sick again?" (Spoiler: it's PEM) but when I ask them to consider that it could be LC and maybe try pacing, they get real defensive.
Because they are fine! THEY are not bedbound! Everything is fine!
Because they are fine! THEY are not bedbound! Everything is fine!
October 6, 2025 at 6:58 AM
People around me describing brain fog, memory issues and "I just got into jogging again, why am I sick again?" (Spoiler: it's PEM) but when I ask them to consider that it could be LC and maybe try pacing, they get real defensive.
Because they are fine! THEY are not bedbound! Everything is fine!
Because they are fine! THEY are not bedbound! Everything is fine!
Reposted by Sam
If you enjoy The Gauntlet and want to see more reporting on COVID & Long COVID, please become a paid supporter at the link! I never paywall public interest reporting but paid members do receive additional personal essays each month. TY!
www.thegauntlet.news/subscribe
www.thegauntlet.news/subscribe
Subscribe to The Gauntlet
COVID Information, Updates, and Commentary. Click to read The Gauntlet, by Julia Doubleday, a Substack publication with tens of thousands of subscribers.
www.thegauntlet.news
October 5, 2025 at 10:46 PM
If you enjoy The Gauntlet and want to see more reporting on COVID & Long COVID, please become a paid supporter at the link! I never paywall public interest reporting but paid members do receive additional personal essays each month. TY!
www.thegauntlet.news/subscribe
www.thegauntlet.news/subscribe
Reposted by Sam
Nobody has Long COVID, but everybody has brain fog, cognitive decline and memory loss. I talk about the overwhelming scientific evidence that COVID damages the brain, and the overwhelming social unwillingness to acknowledge it in my latest:
www.thegauntlet.news/p/when-will-...
www.thegauntlet.news/p/when-will-...
When Will the Lion Concern Himself
Joking memes make light of the uncomfortable reality: everyone's got a little of that post-COVID brain damage these days
www.thegauntlet.news
October 5, 2025 at 10:46 PM
Nobody has Long COVID, but everybody has brain fog, cognitive decline and memory loss. I talk about the overwhelming scientific evidence that COVID damages the brain, and the overwhelming social unwillingness to acknowledge it in my latest:
www.thegauntlet.news/p/when-will-...
www.thegauntlet.news/p/when-will-...
Reposted by Sam
"The evidence has been building for years and has been consistent; COVID causes brain damage.
Despite the clear evidence, we’ve continued to infect the population, not once, but repeatedly, with no plan to end the onslaught of reinfections."
#LongCovid
Despite the clear evidence, we’ve continued to infect the population, not once, but repeatedly, with no plan to end the onslaught of reinfections."
#LongCovid
Nobody has Long COVID, but everybody has brain fog, cognitive decline and memory loss. I talk about the overwhelming scientific evidence that COVID damages the brain, and the overwhelming social unwillingness to acknowledge it in my latest:
www.thegauntlet.news/p/when-will-...
www.thegauntlet.news/p/when-will-...
When Will the Lion Concern Himself
Joking memes make light of the uncomfortable reality: everyone's got a little of that post-COVID brain damage these days
www.thegauntlet.news
October 6, 2025 at 1:30 PM
"The evidence has been building for years and has been consistent; COVID causes brain damage.
Despite the clear evidence, we’ve continued to infect the population, not once, but repeatedly, with no plan to end the onslaught of reinfections."
#LongCovid
Despite the clear evidence, we’ve continued to infect the population, not once, but repeatedly, with no plan to end the onslaught of reinfections."
#LongCovid
Reposted by Sam
12 News Now: 'Austin-based nonprofit spreading awareness on the effects of long covid'
'The Long Covid Collective is a support group that formed last year to show those suffering that they are not alone'
www.12newsnow.com/video/news/l...
'The Long Covid Collective is a support group that formed last year to show those suffering that they are not alone'
www.12newsnow.com/video/news/l...
Austin-based nonprofit spreading awareness on the effects of long covid
The Long Covid Collective is a support group that formed last year to show those suffering that they are not alone
www.12newsnow.com
October 6, 2025 at 1:54 PM
12 News Now: 'Austin-based nonprofit spreading awareness on the effects of long covid'
'The Long Covid Collective is a support group that formed last year to show those suffering that they are not alone'
www.12newsnow.com/video/news/l...
'The Long Covid Collective is a support group that formed last year to show those suffering that they are not alone'
www.12newsnow.com/video/news/l...
Reposted by Sam
How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them?
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
Sign the Petition
Demand Federal Action on Biomedical Care for Children Living with Long COVID
chng.it
October 6, 2025 at 2:50 PM
How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them?
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
Reposted by Sam
I haven't seen one single study that shows it's harmless to keep getting Covid again & again. But there are thousands of peer-reviewed studies that document long-term harms
October 4, 2025 at 3:16 PM
I haven't seen one single study that shows it's harmless to keep getting Covid again & again. But there are thousands of peer-reviewed studies that document long-term harms
Reposted by Sam
CDC data show the US is in its second largest COVID-19 surge
Experts expect 100 million infections
At least 16 million Americans live with Long COVID, often facing lasting fatigue, pain, and organ issues
Yet only one-third get the updated vaccine
abcnews4.com/lowcountry-l...
Experts expect 100 million infections
At least 16 million Americans live with Long COVID, often facing lasting fatigue, pain, and organ issues
Yet only one-third get the updated vaccine
abcnews4.com/lowcountry-l...
Moderna
The US is in the midst of the second largest COVID-19 surge since the start of the COVID-19 pandemic, according to the CDC. During this surge, experts are predi
abcnews4.com
October 6, 2025 at 3:32 PM
CDC data show the US is in its second largest COVID-19 surge
Experts expect 100 million infections
At least 16 million Americans live with Long COVID, often facing lasting fatigue, pain, and organ issues
Yet only one-third get the updated vaccine
abcnews4.com/lowcountry-l...
Experts expect 100 million infections
At least 16 million Americans live with Long COVID, often facing lasting fatigue, pain, and organ issues
Yet only one-third get the updated vaccine
abcnews4.com/lowcountry-l...
Reposted by Sam
This study found that healthcare workers with #LongCOVID often experience higher stress & burnout at work; felt less connected to their jobs than those who hadn’t got Long Covid; & that those who cared for many Long COVID patients reported feeling emotionally drained -
🧠 New Research Summary
Healthcare worker stress when treating Long Covid patients.
📚Read Summary: shh-uk.org/?p=34787
📚 Full study: pubmed.ncbi.nlm.nih....
#LongCovid #LongCovidSupport #LongCovidRecovery #LongCovidAwareness #LongCovidCommunity #LongCovidResources
Healthcare worker stress when treating Long Covid patients.
📚Read Summary: shh-uk.org/?p=34787
📚 Full study: pubmed.ncbi.nlm.nih....
#LongCovid #LongCovidSupport #LongCovidRecovery #LongCovidAwareness #LongCovidCommunity #LongCovidResources
October 6, 2025 at 3:38 PM
This study found that healthcare workers with #LongCOVID often experience higher stress & burnout at work; felt less connected to their jobs than those who hadn’t got Long Covid; & that those who cared for many Long COVID patients reported feeling emotionally drained -
Reposted by Sam
Slept on it and 95% sure my ongoing issues with malaise, brain fog, and sleep issues are probably long covid
Wish i knew what to do about it but at least it's not just me being like that for no reason.
Wish i knew what to do about it but at least it's not just me being like that for no reason.
October 6, 2025 at 3:46 PM
Slept on it and 95% sure my ongoing issues with malaise, brain fog, and sleep issues are probably long covid
Wish i knew what to do about it but at least it's not just me being like that for no reason.
Wish i knew what to do about it but at least it's not just me being like that for no reason.
Reposted by Sam
In Scotland, the disabled pay TWICE
🏥 84% of Scots with #LongCovid pay for supplements.
59% for alternative therapies. 41% for private appointments.
...Because Scottish Government funding is only £9.70 per patient per year
#LongCovidScotland #ChronicIllness #Disability #Scotland
🏥 84% of Scots with #LongCovid pay for supplements.
59% for alternative therapies. 41% for private appointments.
...Because Scottish Government funding is only £9.70 per patient per year
#LongCovidScotland #ChronicIllness #Disability #Scotland
October 6, 2025 at 3:59 PM
In Scotland, the disabled pay TWICE
🏥 84% of Scots with #LongCovid pay for supplements.
59% for alternative therapies. 41% for private appointments.
...Because Scottish Government funding is only £9.70 per patient per year
#LongCovidScotland #ChronicIllness #Disability #Scotland
🏥 84% of Scots with #LongCovid pay for supplements.
59% for alternative therapies. 41% for private appointments.
...Because Scottish Government funding is only £9.70 per patient per year
#LongCovidScotland #ChronicIllness #Disability #Scotland
Reposted by Sam
People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏
September 27, 2025 at 8:23 PM
People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏
Reposted by Sam
I have fairly mild long COVID and what that means in practice is that I can work but have no ability to socialise, I can do 5000 steps but have to come home with crushing fatigue and sleep for hours to recover, I volunteer for two hours a fortnight when I used to do volunteer work every day.
People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏
September 28, 2025 at 7:32 AM
I have fairly mild long COVID and what that means in practice is that I can work but have no ability to socialise, I can do 5000 steps but have to come home with crushing fatigue and sleep for hours to recover, I volunteer for two hours a fortnight when I used to do volunteer work every day.
Reposted by Sam
The
@theguardian.com
today.
'Eventually, the NHS diagnosis came through: ME/CFS. This was frustrating. Milly had become unwell just after a global pandemic. Occam’s razor – the principle that the simplest explanation is probably the correct one – suggested she had Long Covid.
#LongCovidKids
@theguardian.com
today.
'Eventually, the NHS diagnosis came through: ME/CFS. This was frustrating. Milly had become unwell just after a global pandemic. Occam’s razor – the principle that the simplest explanation is probably the correct one – suggested she had Long Covid.
#LongCovidKids
September 28, 2025 at 9:43 AM
The
@theguardian.com
today.
'Eventually, the NHS diagnosis came through: ME/CFS. This was frustrating. Milly had become unwell just after a global pandemic. Occam’s razor – the principle that the simplest explanation is probably the correct one – suggested she had Long Covid.
#LongCovidKids
@theguardian.com
today.
'Eventually, the NHS diagnosis came through: ME/CFS. This was frustrating. Milly had become unwell just after a global pandemic. Occam’s razor – the principle that the simplest explanation is probably the correct one – suggested she had Long Covid.
#LongCovidKids
Reposted by Sam
Seems obvious that @greenparty.org.uk should be signing this global pledge for healthy indoor air. A natural extension of their work on #EllasLaw and their excellent #Covid19 & #LongCovid policy.
@nataliegreenpeer.bsky.social @sianberry.bsky.social @zackpolanski.bsky.social @bluelumin.bsky.social
@nataliegreenpeer.bsky.social @sianberry.bsky.social @zackpolanski.bsky.social @bluelumin.bsky.social
Hi @nataliegreenpeer.bsky.social - would you please consider signing this pledge arising out of the recent inaugural High-Level Side Event on Healthy Indoor Air, taking place on the margins of the UN General Assembly?
www.airclub.org
www.airclub.org
www.airclub.org
www.airclub.org
Air Club
A global coalition aspiring towards healthy indoor air.
www.airclub.org
September 28, 2025 at 9:51 AM
Seems obvious that @greenparty.org.uk should be signing this global pledge for healthy indoor air. A natural extension of their work on #EllasLaw and their excellent #Covid19 & #LongCovid policy.
@nataliegreenpeer.bsky.social @sianberry.bsky.social @zackpolanski.bsky.social @bluelumin.bsky.social
@nataliegreenpeer.bsky.social @sianberry.bsky.social @zackpolanski.bsky.social @bluelumin.bsky.social
@binitakane.bsky.social Hi Binita, what would be involved in coming to see you as a patient?
September 28, 2025 at 11:34 AM
@binitakane.bsky.social Hi Binita, what would be involved in coming to see you as a patient?
Reposted by Sam
COVID is surging
Wear a mask indoors
Get the vaccine.
Long covid sucks.
Wear a mask indoors
Get the vaccine.
Long covid sucks.
September 8, 2025 at 3:15 PM
COVID is surging
Wear a mask indoors
Get the vaccine.
Long covid sucks.
Wear a mask indoors
Get the vaccine.
Long covid sucks.
Reposted by Sam
The latest edition of our SHH-UK newsletter is now live!
Find out what we've been getting up to and what's we've got planned: shh-uk.org/news/
Subscribe and stay engaged with this vital community. #LongCovid #HealthcareSupport
Find out what we've been getting up to and what's we've got planned: shh-uk.org/news/
Subscribe and stay engaged with this vital community. #LongCovid #HealthcareSupport
September 3, 2025 at 5:11 PM
The latest edition of our SHH-UK newsletter is now live!
Find out what we've been getting up to and what's we've got planned: shh-uk.org/news/
Subscribe and stay engaged with this vital community. #LongCovid #HealthcareSupport
Find out what we've been getting up to and what's we've got planned: shh-uk.org/news/
Subscribe and stay engaged with this vital community. #LongCovid #HealthcareSupport
Reposted by Sam
Study; #Metformin may reduce risk of #LongCOVID by 36% in overweight or obese adults. www.cidrap.umn.edu/covid-19/met...
Metformin may reduce risk of long COVID by 36% in overweight or obese adults
www.cidrap.umn.edu
September 3, 2025 at 1:14 PM
Study; #Metformin may reduce risk of #LongCOVID by 36% in overweight or obese adults. www.cidrap.umn.edu/covid-19/met...
Reposted by Sam
New in BJGP Life: Dr Elke Hausmann, a GP with Long Covid, critiques the “exercise cures all” narrative in The Salt Path & calls for empathy, pacing & nuance in chronic illness care. 👉 bjgplife.com/what-does-th... #longcovid #chronicillness #saltpath
What does the fallout from the ‘Salt Path’ saga tell us about our society’s ideas about chronic illness and exercise?
The premise of 'The Salt Path' is that a couple is blamelessly made homeless, at the same time as the husband is diagnosed with a 'terminal condition', after which they decide to walk the South West C
bjgplife.com
September 1, 2025 at 1:33 PM
New in BJGP Life: Dr Elke Hausmann, a GP with Long Covid, critiques the “exercise cures all” narrative in The Salt Path & calls for empathy, pacing & nuance in chronic illness care. 👉 bjgplife.com/what-does-th... #longcovid #chronicillness #saltpath
Reposted by Sam
On this day in COVID history, September 1, 2021:
Coronavirus vaccines cut risk of long Covid, study finds
Source: BBC
https://www.bbc.com/news/health-58410354
Coronavirus vaccines cut risk of long Covid, study finds
Source: BBC
https://www.bbc.com/news/health-58410354
September 1, 2025 at 2:55 PM
On this day in COVID history, September 1, 2021:
Coronavirus vaccines cut risk of long Covid, study finds
Source: BBC
https://www.bbc.com/news/health-58410354
Coronavirus vaccines cut risk of long Covid, study finds
Source: BBC
https://www.bbc.com/news/health-58410354
Reposted by Sam
I think Long Covid has given me anhedonia.
I think it's damaged my brain, so it's really hard to enjoy ANYTHING.
I think it's damaged my brain, so it's really hard to enjoy ANYTHING.
August 24, 2025 at 3:01 PM
I think Long Covid has given me anhedonia.
I think it's damaged my brain, so it's really hard to enjoy ANYTHING.
I think it's damaged my brain, so it's really hard to enjoy ANYTHING.
Reposted by Sam
Keep the positive vaccine news coming - chickenpox vaccine for kids on the NHS, shingles vaccine reducing the risk of heart attacks - what‘s next?
How about general access to the Covid vaccine to reduce the risk of #LongCovid??
www.theguardian.com/society/2025...
How about general access to the Covid vaccine to reduce the risk of #LongCovid??
www.theguardian.com/society/2025...
Shingles jab may reduce risk of heart attack, pioneering research reveals
First global systematic review finds vaccine associated with 18% lower risk of stroke or heart attack in adults
www.theguardian.com
August 29, 2025 at 11:17 AM
Keep the positive vaccine news coming - chickenpox vaccine for kids on the NHS, shingles vaccine reducing the risk of heart attacks - what‘s next?
How about general access to the Covid vaccine to reduce the risk of #LongCovid??
www.theguardian.com/society/2025...
How about general access to the Covid vaccine to reduce the risk of #LongCovid??
www.theguardian.com/society/2025...
Reposted by Sam
Zack’s visit to our local party this year gave us such a boost. His energy, drive and empathy are why I voted for Zack for leader.
Whatever happens when voting closes on Saturday, this is my last week as Green Party Deputy Leader.
I just want to say a huge thank you to every single member - your energy has powered me across England & Wales these past few years.
I just want to say a huge thank you to every single member - your energy has powered me across England & Wales these past few years.
August 27, 2025 at 9:19 AM
Zack’s visit to our local party this year gave us such a boost. His energy, drive and empathy are why I voted for Zack for leader.