Brunella Longo
@brunellalongo.bsky.social
Writer (London, UK)
Currently researching and writing non-fiction, fiction and poems about knowledge and autoimmune diseases.
Personal website: http://www.pantarei.it
Contact email: icm2re @ gmail.com
Currently researching and writing non-fiction, fiction and poems about knowledge and autoimmune diseases.
Personal website: http://www.pantarei.it
Contact email: icm2re @ gmail.com
Pinned
I need collaborations + money to pay for essentials.
Don't be afraid to contact me and see if you can give me some work for shaping, advancing, communicating research and care strategies in autoimmune diseases: I bring my lived experience, superb knowledge management skills, and great creativity.
Don't be afraid to contact me and see if you can give me some work for shaping, advancing, communicating research and care strategies in autoimmune diseases: I bring my lived experience, superb knowledge management skills, and great creativity.
"The surgeon with the parakeets and the lost appendix" is a short story from "The Blind Spot. Adverse Childhood Experiences And #AutoimmuneDiseases"
The protagonist is the retired Italian gastroenterologist Emeritus Professor Labutta
#microbiome #tregs #Alzheimers
www.amazon.co.uk/dp/B0FV4RQXNG
The protagonist is the retired Italian gastroenterologist Emeritus Professor Labutta
#microbiome #tregs #Alzheimers
www.amazon.co.uk/dp/B0FV4RQXNG
December 7, 2025 at 9:25 PM
"The surgeon with the parakeets and the lost appendix" is a short story from "The Blind Spot. Adverse Childhood Experiences And #AutoimmuneDiseases"
The protagonist is the retired Italian gastroenterologist Emeritus Professor Labutta
#microbiome #tregs #Alzheimers
www.amazon.co.uk/dp/B0FV4RQXNG
The protagonist is the retired Italian gastroenterologist Emeritus Professor Labutta
#microbiome #tregs #Alzheimers
www.amazon.co.uk/dp/B0FV4RQXNG
I need collaborations + money to pay for essentials.
Don't be afraid to contact me and see if you can give me some work for shaping, advancing, communicating research and care strategies in autoimmune diseases: I bring my lived experience, superb knowledge management skills, and great creativity.
Don't be afraid to contact me and see if you can give me some work for shaping, advancing, communicating research and care strategies in autoimmune diseases: I bring my lived experience, superb knowledge management skills, and great creativity.
December 7, 2025 at 8:45 PM
I need collaborations + money to pay for essentials.
Don't be afraid to contact me and see if you can give me some work for shaping, advancing, communicating research and care strategies in autoimmune diseases: I bring my lived experience, superb knowledge management skills, and great creativity.
Don't be afraid to contact me and see if you can give me some work for shaping, advancing, communicating research and care strategies in autoimmune diseases: I bring my lived experience, superb knowledge management skills, and great creativity.
In my 20s I taught ISO 214:1976 (Abstracts).
That may be why I feel I have to share this: the French version of ISO 22989:2022 "Artificial intelligence concepts and terminology" is now available BUT the add on GENERATIVE AI still "in the enquire phase with ISO members"
www.iso.org/standard/742...
That may be why I feel I have to share this: the French version of ISO 22989:2022 "Artificial intelligence concepts and terminology" is now available BUT the add on GENERATIVE AI still "in the enquire phase with ISO members"
www.iso.org/standard/742...
ISO/IEC 22989:2022
Information technology — Artificial intelligence — Artificial intelligence concepts and terminology
www.iso.org
December 6, 2025 at 7:45 PM
In my 20s I taught ISO 214:1976 (Abstracts).
That may be why I feel I have to share this: the French version of ISO 22989:2022 "Artificial intelligence concepts and terminology" is now available BUT the add on GENERATIVE AI still "in the enquire phase with ISO members"
www.iso.org/standard/742...
That may be why I feel I have to share this: the French version of ISO 22989:2022 "Artificial intelligence concepts and terminology" is now available BUT the add on GENERATIVE AI still "in the enquire phase with ISO members"
www.iso.org/standard/742...
Reposted by Brunella Longo
This is AI. It's fake. It's fictional.
This is the new world of AI-Evangelism.
It's manipulative, disingenuous, and predatory.
It targets older, vulnerable people who won’t know the difference – aiming to convert through deception for views and ad revenue.
www.youtube.com/watch?v=eiyv...
This is the new world of AI-Evangelism.
It's manipulative, disingenuous, and predatory.
It targets older, vulnerable people who won’t know the difference – aiming to convert through deception for views and ad revenue.
www.youtube.com/watch?v=eiyv...
99-Year-Old Atheist Goes Viral for His Baptism — He Finally Tells All
YouTube video by When God Spoke To Me
www.youtube.com
December 5, 2025 at 10:55 AM
This is AI. It's fake. It's fictional.
This is the new world of AI-Evangelism.
It's manipulative, disingenuous, and predatory.
It targets older, vulnerable people who won’t know the difference – aiming to convert through deception for views and ad revenue.
www.youtube.com/watch?v=eiyv...
This is the new world of AI-Evangelism.
It's manipulative, disingenuous, and predatory.
It targets older, vulnerable people who won’t know the difference – aiming to convert through deception for views and ad revenue.
www.youtube.com/watch?v=eiyv...
Conclusions about novel autoantibodies for #sjogrens available from @acr-journals.bsky.social? 👇
The canniness of antibodies, again...
Not too long now before I publish my expanded considerations. Here what I wrote along the way, in:
THE SICCA MESSENGER TEASERS
www.pantarei.it/teasers.pdf
The canniness of antibodies, again...
Not too long now before I publish my expanded considerations. Here what I wrote along the way, in:
THE SICCA MESSENGER TEASERS
www.pantarei.it/teasers.pdf
December 4, 2025 at 8:52 PM
Conclusions about novel autoantibodies for #sjogrens available from @acr-journals.bsky.social? 👇
The canniness of antibodies, again...
Not too long now before I publish my expanded considerations. Here what I wrote along the way, in:
THE SICCA MESSENGER TEASERS
www.pantarei.it/teasers.pdf
The canniness of antibodies, again...
Not too long now before I publish my expanded considerations. Here what I wrote along the way, in:
THE SICCA MESSENGER TEASERS
www.pantarei.it/teasers.pdf
The Sicca Messenger Teasers. Short articles about knowledge management, Sjögren's and other autoimmune diseases. A work in progress (September 2023 - July 2025)
Snapshots along my research and creative project
Previously on LinkedIn, with links posted here
www.pantarei.it/teasers.pdf
Snapshots along my research and creative project
Previously on LinkedIn, with links posted here
www.pantarei.it/teasers.pdf
December 3, 2025 at 10:35 PM
The Sicca Messenger Teasers. Short articles about knowledge management, Sjögren's and other autoimmune diseases. A work in progress (September 2023 - July 2025)
Snapshots along my research and creative project
Previously on LinkedIn, with links posted here
www.pantarei.it/teasers.pdf
Snapshots along my research and creative project
Previously on LinkedIn, with links posted here
www.pantarei.it/teasers.pdf
Reposted by Brunella Longo
In "Teeth of Love" Amina's painful tooth extraction and risk of sepsi as a teenager is an opportunity to learn about the importance of dentistry in systemic autoimmune diseases like #Sjögrens, domain still not included in EULAR Sjögren's Disease Activity Index ESSDAI
www.amazon.co.uk/dp/B0FXBP3HC3
www.amazon.co.uk/dp/B0FXBP3HC3
October 24, 2025 at 9:01 PM
In "Teeth of Love" Amina's painful tooth extraction and risk of sepsi as a teenager is an opportunity to learn about the importance of dentistry in systemic autoimmune diseases like #Sjögrens, domain still not included in EULAR Sjögren's Disease Activity Index ESSDAI
www.amazon.co.uk/dp/B0FXBP3HC3
www.amazon.co.uk/dp/B0FXBP3HC3
Together with "Penicillin Power", in which the protagonist is involved in a documentary about the hygiene hypothesis of autoimmune diseases, "The Patch" 👇 is available as an ebook
www.amazon.com/dp/B0FX5SFZTJ
or within the paperback edition of "The Blind Spot"
www.amazon.com/dp/B0FX5SFZTJ
or within the paperback edition of "The Blind Spot"
The Patch talks about youth resilience, the power and limits of different types of knowledge, 3 decades before the discovery that alopecia areata is an #autoimmunedisease.
It is written with lightness and precision. It's fiction, but it tells scientific truth.
#jakinhibitors in the footnotes
It is written with lightness and precision. It's fiction, but it tells scientific truth.
#jakinhibitors in the footnotes
December 2, 2025 at 8:13 PM
Together with "Penicillin Power", in which the protagonist is involved in a documentary about the hygiene hypothesis of autoimmune diseases, "The Patch" 👇 is available as an ebook
www.amazon.com/dp/B0FX5SFZTJ
or within the paperback edition of "The Blind Spot"
www.amazon.com/dp/B0FX5SFZTJ
or within the paperback edition of "The Blind Spot"
The Patch talks about youth resilience, the power and limits of different types of knowledge, 3 decades before the discovery that alopecia areata is an #autoimmunedisease.
It is written with lightness and precision. It's fiction, but it tells scientific truth.
#jakinhibitors in the footnotes
It is written with lightness and precision. It's fiction, but it tells scientific truth.
#jakinhibitors in the footnotes
December 2, 2025 at 8:10 PM
The Patch talks about youth resilience, the power and limits of different types of knowledge, 3 decades before the discovery that alopecia areata is an #autoimmunedisease.
It is written with lightness and precision. It's fiction, but it tells scientific truth.
#jakinhibitors in the footnotes
It is written with lightness and precision. It's fiction, but it tells scientific truth.
#jakinhibitors in the footnotes
Didn't I write "I wish the reader can find in any of the stories of The Blind Spot something to learn, a factual content, an idea to improve the quality of life, intertwined with entertaining characters and contexts..."?
A reader told me an idea for a sequel to "The Phantom Tonsils" 😂 Amazing! 😂
A reader told me an idea for a sequel to "The Phantom Tonsils" 😂 Amazing! 😂
December 2, 2025 at 6:00 PM
Didn't I write "I wish the reader can find in any of the stories of The Blind Spot something to learn, a factual content, an idea to improve the quality of life, intertwined with entertaining characters and contexts..."?
A reader told me an idea for a sequel to "The Phantom Tonsils" 😂 Amazing! 😂
A reader told me an idea for a sequel to "The Phantom Tonsils" 😂 Amazing! 😂
Reposted by Brunella Longo
For anyone interested in reading our first-ever report to the G20 on inequality, you may find it at ipdcolumbia.org/event/landma...
Landmark G20 Report Led by Nobel Laureate Joseph Stiglitz Sounds Alarm on ‘Inequality Emergency’ and Calls for International Panel on Inequality. – Initiative for Policy Dialogue
ipdcolumbia.org
December 1, 2025 at 7:56 PM
For anyone interested in reading our first-ever report to the G20 on inequality, you may find it at ipdcolumbia.org/event/landma...
Amazing somebody I met in South London today still remembered me from when I tried to get funds for a project engaging with libraries, museums and archives, 15 years ago, and that article I wrote in 2018 in which I quoted Hal R Varian
("Unlike gear and pulleys, you can never run out of HTML!")
("Unlike gear and pulleys, you can never run out of HTML!")
December 2, 2025 at 5:07 PM
Amazing somebody I met in South London today still remembered me from when I tried to get funds for a project engaging with libraries, museums and archives, 15 years ago, and that article I wrote in 2018 in which I quoted Hal R Varian
("Unlike gear and pulleys, you can never run out of HTML!")
("Unlike gear and pulleys, you can never run out of HTML!")
Reposted by Brunella Longo
Often for everybody with #Sjogrens, #hashimoto or any #Thyroid disease hypercholesterolaemia is not correctly framed and addressed.
My (grounded) opinion is that it should be disentangled from both myths of "familial" and "cardiovascular" and seen as a symptom of autoimmunity. Worth consideration.
My (grounded) opinion is that it should be disentangled from both myths of "familial" and "cardiovascular" and seen as a symptom of autoimmunity. Worth consideration.
Familial hypercholesterolaemia is still inadequately diagnosed and undertreated, with many affected people remaining at high risk of early cardiovascular disease www.thelancet.com/journals/lan...
#familial #hypercholesterolaemia #ASCVD
#MedSky #EndoSky #CardioSky
#familial #hypercholesterolaemia #ASCVD
#MedSky #EndoSky #CardioSky
October 23, 2025 at 5:52 PM
Often for everybody with #Sjogrens, #hashimoto or any #Thyroid disease hypercholesterolaemia is not correctly framed and addressed.
My (grounded) opinion is that it should be disentangled from both myths of "familial" and "cardiovascular" and seen as a symptom of autoimmunity. Worth consideration.
My (grounded) opinion is that it should be disentangled from both myths of "familial" and "cardiovascular" and seen as a symptom of autoimmunity. Worth consideration.
Reposted by Brunella Longo
The Academy has repeatedly highlighted the links between social inequity, poor child health and lifelong impacts - making the case for both immediate support and systemic joined-up action to address structural inequalities.
Find out more 👇
bit.ly/4pe7vTw
Find out more 👇
bit.ly/4pe7vTw
December 1, 2025 at 12:17 PM
The Academy has repeatedly highlighted the links between social inequity, poor child health and lifelong impacts - making the case for both immediate support and systemic joined-up action to address structural inequalities.
Find out more 👇
bit.ly/4pe7vTw
Find out more 👇
bit.ly/4pe7vTw
Reposted by Brunella Longo
If you're looking to develop your knowledge of humanism, look no further than our online course. It's FREE to access and broken down into sections of content you can enjoy at your own pace! Find out more and start learning today. courses.understandinghumanism.org.uk/courses/intr...
Introducing Humanism: non-religious approaches to life, with Sandi Toksvig
Click here to start the course Learn about how humanists approach life’s big questions Humanism is a non-religious, ethical world view shared by millions of people around the world. Humanists believe ...
courses.understandinghumanism.org.uk
December 1, 2025 at 4:24 PM
If you're looking to develop your knowledge of humanism, look no further than our online course. It's FREE to access and broken down into sections of content you can enjoy at your own pace! Find out more and start learning today. courses.understandinghumanism.org.uk/courses/intr...
Reposted by Brunella Longo
We at the Review mourn the loss of Tom Stoppard (1937–2025). In celebration of his life and work, we’ve unlocked his Art of Theater interview from the archive. buff.ly/0waMbzK
November 29, 2025 at 11:00 PM
We at the Review mourn the loss of Tom Stoppard (1937–2025). In celebration of his life and work, we’ve unlocked his Art of Theater interview from the archive. buff.ly/0waMbzK
"I have no symptoms, I have opinions," a patient says at one point.
Tom Stoppard / André Previn, Every Good Boy Deserves Favour, 1977
🥲
Tom Stoppard / André Previn, Every Good Boy Deserves Favour, 1977
🥲
November 29, 2025 at 11:13 PM
"I have no symptoms, I have opinions," a patient says at one point.
Tom Stoppard / André Previn, Every Good Boy Deserves Favour, 1977
🥲
Tom Stoppard / André Previn, Every Good Boy Deserves Favour, 1977
🥲
I like the idea of occupational physical activity becoming a thing of the past when humanoids will be a competitive alternative in many industries.
Point is: who is going to pay for my knees replacements if #autoimmunedisease destroys my joints and I do not have enough income from my creative work?
Point is: who is going to pay for my knees replacements if #autoimmunedisease destroys my joints and I do not have enough income from my creative work?
November 29, 2025 at 8:44 PM
I like the idea of occupational physical activity becoming a thing of the past when humanoids will be a competitive alternative in many industries.
Point is: who is going to pay for my knees replacements if #autoimmunedisease destroys my joints and I do not have enough income from my creative work?
Point is: who is going to pay for my knees replacements if #autoimmunedisease destroys my joints and I do not have enough income from my creative work?
We are still at a v early stage in understanding influence of LLM on research / knowledge / data management processes - and democracy altogether!
It is totally preposterous to expect AI helps content creators to make a living for several years to come.
A cultural paradigm shift must come first.
It is totally preposterous to expect AI helps content creators to make a living for several years to come.
A cultural paradigm shift must come first.
💭 How are LLMs transforming research?
Join Professor Sir Bashir M. Al-Hashimi on Tuesday 9 December as he explores how Generative AI is revolutionising research workflows.
Reserve your spot now ⬇️
www.kcl.ac.uk/events/rethi...
@kingscollegelondon.bsky.social | @kingsnmes.bsky.social
Join Professor Sir Bashir M. Al-Hashimi on Tuesday 9 December as he explores how Generative AI is revolutionising research workflows.
Reserve your spot now ⬇️
www.kcl.ac.uk/events/rethi...
@kingscollegelondon.bsky.social | @kingsnmes.bsky.social
Rethinking Research in the Age of LLMs* | King's College London
Professor Sir Bashir M. Al-Hashimi shows how LLMs are influencing the research process.
www.kcl.ac.uk
November 29, 2025 at 7:51 PM
We are still at a v early stage in understanding influence of LLM on research / knowledge / data management processes - and democracy altogether!
It is totally preposterous to expect AI helps content creators to make a living for several years to come.
A cultural paradigm shift must come first.
It is totally preposterous to expect AI helps content creators to make a living for several years to come.
A cultural paradigm shift must come first.
Looking forward to learning something from the specialists gathering for the @ukbiobank.bsky.social 2025 Conference - I will follow online.
Data on adverse childhood experiences as published this year have been very helpful for me to shape my short stories "The Blind Spot".
Data on adverse childhood experiences as published this year have been very helpful for me to shape my short stories "The Blind Spot".
Following our latest update, the @ukbiobank.bsky.social dataset now offers the world's biggest collection of metabolomic data.
These biomarkers from half a million participant blood samples, provide researchers with a detailed picture of how the body processes energy and nutrients.
These biomarkers from half a million participant blood samples, provide researchers with a detailed picture of how the body processes energy and nutrients.
November 29, 2025 at 7:38 PM
Looking forward to learning something from the specialists gathering for the @ukbiobank.bsky.social 2025 Conference - I will follow online.
Data on adverse childhood experiences as published this year have been very helpful for me to shape my short stories "The Blind Spot".
Data on adverse childhood experiences as published this year have been very helpful for me to shape my short stories "The Blind Spot".
Reposted by Brunella Longo
The most important rule in #selfcare with #autoimmunedisease for me is to always try to feel good!
Most days I succeed: it is hard work, but it is worth
I do not fight
I do not make wars with my body
I do not celebrate pain and illness
I learn something good every day, that is unique to me.
Most days I succeed: it is hard work, but it is worth
I do not fight
I do not make wars with my body
I do not celebrate pain and illness
I learn something good every day, that is unique to me.
October 3, 2025 at 5:30 AM
The most important rule in #selfcare with #autoimmunedisease for me is to always try to feel good!
Most days I succeed: it is hard work, but it is worth
I do not fight
I do not make wars with my body
I do not celebrate pain and illness
I learn something good every day, that is unique to me.
Most days I succeed: it is hard work, but it is worth
I do not fight
I do not make wars with my body
I do not celebrate pain and illness
I learn something good every day, that is unique to me.
Reposted by Brunella Longo
If you are researching anything about the tonsils or if you are pondering tonsillectomy for your child this story has something to tell you!
"The Phantom Tonsils" is a little ebook about adverse childhood experiences and autoimmune diseases
www.amazon.co.uk/dp/B0FMXTQ57B
"The Phantom Tonsils" is a little ebook about adverse childhood experiences and autoimmune diseases
www.amazon.co.uk/dp/B0FMXTQ57B
The Phantom Tonsils: A short story
The Phantom Tonsils: A short story eBook : Longo, Brunella: Amazon.co.uk: Kindle Store
www.amazon.co.uk
October 16, 2025 at 6:40 PM
If you are researching anything about the tonsils or if you are pondering tonsillectomy for your child this story has something to tell you!
"The Phantom Tonsils" is a little ebook about adverse childhood experiences and autoimmune diseases
www.amazon.co.uk/dp/B0FMXTQ57B
"The Phantom Tonsils" is a little ebook about adverse childhood experiences and autoimmune diseases
www.amazon.co.uk/dp/B0FMXTQ57B
Reposted by Brunella Longo
This ebook has two short stories about "Men with Sjögren's", Sam and Simon, extracts from "The Blind Spot".... inspiring and instructive for patients, carers, researchers, clinicians, students, everybody interested (or not) in #autoimmunediseases #scicomm
#BOOKSKY
www.amazon.co.uk/dp/B0FXBK99MT
#BOOKSKY
www.amazon.co.uk/dp/B0FXBK99MT
November 10, 2025 at 6:42 PM
This ebook has two short stories about "Men with Sjögren's", Sam and Simon, extracts from "The Blind Spot".... inspiring and instructive for patients, carers, researchers, clinicians, students, everybody interested (or not) in #autoimmunediseases #scicomm
#BOOKSKY
www.amazon.co.uk/dp/B0FXBK99MT
#BOOKSKY
www.amazon.co.uk/dp/B0FXBK99MT
Interesting thread about fatigue a symptom that is extreme in many cases of ME/CFS but it is also present in any #autoimmunedisease - What surprises me is the lack of attention to hormones, vitamins and minerals levels
1) Reading this review on fatigue in other diseases: it's notable how it manifests early in the illness (often before diagnosis), how it's often poorly explained (correlates poorly with pathology markers), yet is reported to be one of the most disabling symptoms.
November 28, 2025 at 8:56 PM
Interesting thread about fatigue a symptom that is extreme in many cases of ME/CFS but it is also present in any #autoimmunedisease - What surprises me is the lack of attention to hormones, vitamins and minerals levels
"Source : Poems About Homelessness" is a collection of 25 poems about lived experiences of protracted and repeated periods of homelessness, and their possible impact on the development of #autoimmunedisease 🧵
www.amazon.co.uk/dp/B0FM3RRR78
Index, 1st page of the introduction, links, ISBNs, more 👇
www.amazon.co.uk/dp/B0FM3RRR78
Index, 1st page of the introduction, links, ISBNs, more 👇
November 28, 2025 at 8:10 PM
"Source : Poems About Homelessness" is a collection of 25 poems about lived experiences of protracted and repeated periods of homelessness, and their possible impact on the development of #autoimmunedisease 🧵
www.amazon.co.uk/dp/B0FM3RRR78
Index, 1st page of the introduction, links, ISBNs, more 👇
www.amazon.co.uk/dp/B0FM3RRR78
Index, 1st page of the introduction, links, ISBNs, more 👇