Aiure
@aiure.bsky.social
• cis, she/her • bi/pan • introvert • abstract digital art (NOT AI) • fibromyalgia • CFS/ME • migraine • long covid • osteoarthritis • neurodivergent • settler on unceded syilx lands •
Pinned
Funny how the first day we get snow in the valley is the first day I've taken an unplanned sick day in several months. I took a vacation day so at least I'm not missing out on any pay.
I hate winter so much 😫
I hate winter so much 😫
November 27, 2025 at 8:19 PM
Funny how the first day we get snow in the valley is the first day I've taken an unplanned sick day in several months. I took a vacation day so at least I'm not missing out on any pay.
I hate winter so much 😫
I hate winter so much 😫
Drinking less caffeine than ever yet feeling some of my worst pain and fatigue days means, as usual, one size fits all treatments are bullshit.
I've also lost 20lbs in 1.5yrs and am more active overall. Fuck your weight loss theories, that's not some magical cure either.
I've also lost 20lbs in 1.5yrs and am more active overall. Fuck your weight loss theories, that's not some magical cure either.
November 25, 2025 at 5:34 PM
Drinking less caffeine than ever yet feeling some of my worst pain and fatigue days means, as usual, one size fits all treatments are bullshit.
I've also lost 20lbs in 1.5yrs and am more active overall. Fuck your weight loss theories, that's not some magical cure either.
I've also lost 20lbs in 1.5yrs and am more active overall. Fuck your weight loss theories, that's not some magical cure either.
I've been catching myself making pained frowny faces the last few months and I think I just need to suck it up and start taking more cannabis during the day.
Switching to edibles has made me much more aware of the cost and I've been avoiding taking as much as I did when I vaped.
Switching to edibles has made me much more aware of the cost and I've been avoiding taking as much as I did when I vaped.
November 20, 2025 at 6:25 AM
I've been catching myself making pained frowny faces the last few months and I think I just need to suck it up and start taking more cannabis during the day.
Switching to edibles has made me much more aware of the cost and I've been avoiding taking as much as I did when I vaped.
Switching to edibles has made me much more aware of the cost and I've been avoiding taking as much as I did when I vaped.
Took 20min to clean the shower earlier then crashed horribly and slept for 3hrs. Instant post-exertional malaise is normal for me, but even with so little activity, I can't predict if it'll last only a few hours, a few days, or a few weeks.
November 16, 2025 at 9:09 AM
Took 20min to clean the shower earlier then crashed horribly and slept for 3hrs. Instant post-exertional malaise is normal for me, but even with so little activity, I can't predict if it'll last only a few hours, a few days, or a few weeks.
The nosepiece on my computer glasses snapped 💔 I'll start getting constant migraines if I stop wearing them, regardless of my monitor settings. So I got a cheap pair of blue blockers for now and I'll see if an optometrist can fix them at some point.
November 15, 2025 at 9:26 AM
The nosepiece on my computer glasses snapped 💔 I'll start getting constant migraines if I stop wearing them, regardless of my monitor settings. So I got a cheap pair of blue blockers for now and I'll see if an optometrist can fix them at some point.
Fatiha El-Ghorri
Taskmaster series 19 episode 3
Aptly titled "My Presumably Scrotum"
Taskmaster series 19 episode 3
Aptly titled "My Presumably Scrotum"
November 14, 2025 at 6:18 AM
Fatiha El-Ghorri
Taskmaster series 19 episode 3
Aptly titled "My Presumably Scrotum"
Taskmaster series 19 episode 3
Aptly titled "My Presumably Scrotum"
I've always hand-washed dishes and considered dishwashers a luxury I couldn't afford.
Now that I have one, I still prefer to hand-wash, but mostly because we don't usually make enough dishes in a day to warrant using it.
But I gotta say it's super handy when I don't feel well!
Now that I have one, I still prefer to hand-wash, but mostly because we don't usually make enough dishes in a day to warrant using it.
But I gotta say it's super handy when I don't feel well!
November 13, 2025 at 6:36 AM
I've always hand-washed dishes and considered dishwashers a luxury I couldn't afford.
Now that I have one, I still prefer to hand-wash, but mostly because we don't usually make enough dishes in a day to warrant using it.
But I gotta say it's super handy when I don't feel well!
Now that I have one, I still prefer to hand-wash, but mostly because we don't usually make enough dishes in a day to warrant using it.
But I gotta say it's super handy when I don't feel well!
Today has been one of the worst long covid days I've had in a while. I'm breathless just getting up to shuffle around the apartment. Rinsed a few dishes just now and had to stop to take a breather mid way.
I did manage to have a shower earlier though so that's a win 🎉
I did manage to have a shower earlier though so that's a win 🎉
November 12, 2025 at 1:29 AM
Today has been one of the worst long covid days I've had in a while. I'm breathless just getting up to shuffle around the apartment. Rinsed a few dishes just now and had to stop to take a breather mid way.
I did manage to have a shower earlier though so that's a win 🎉
I did manage to have a shower earlier though so that's a win 🎉
Our apartment building had a little pizza dinner get-together in the co-working lounge and I would've loved to have stayed to meet everyone but the cacophony of chatter was overwhelming. My voice doesn't carry well, and it was super hard to understand anyone speaking. 😮💨
November 11, 2025 at 5:45 AM
Our apartment building had a little pizza dinner get-together in the co-working lounge and I would've loved to have stayed to meet everyone but the cacophony of chatter was overwhelming. My voice doesn't carry well, and it was super hard to understand anyone speaking. 😮💨
Sitting at work swimming through the thick mud of brain fog, my entire body's on fire, my mind can only scream and all I want to do is curl up in a ball and cry, but knowing I'm socially expected to just carry on as if I were healthy because my illnesses are chronic 🫠
November 5, 2025 at 8:53 PM
Sitting at work swimming through the thick mud of brain fog, my entire body's on fire, my mind can only scream and all I want to do is curl up in a ball and cry, but knowing I'm socially expected to just carry on as if I were healthy because my illnesses are chronic 🫠
Two days later and I'm still extra stiff, sore, and fatigued. But I'm no longer stooped and slowly shuffling around, so I think I'll be good to work Tuesday as usual. Not the best reaction this year, but not the worst, either.
Had nervous sweats all day but I'm done with my spooky shots for another year.
I'm not great with needles to begin with but I think at this point in my life the most upsetting thing is never knowing exactly how severe the pain/fatigue flare will be.
I'm not great with needles to begin with but I think at this point in my life the most upsetting thing is never knowing exactly how severe the pain/fatigue flare will be.
Doing the most spookiest scariest thing ever tonight
I'm getting vaaaaaaaciiiiiiiiiinessssss 👻
I'm getting vaaaaaaaciiiiiiiiiinessssss 👻
November 3, 2025 at 6:58 AM
Two days later and I'm still extra stiff, sore, and fatigued. But I'm no longer stooped and slowly shuffling around, so I think I'll be good to work Tuesday as usual. Not the best reaction this year, but not the worst, either.
Had nervous sweats all day but I'm done with my spooky shots for another year.
I'm not great with needles to begin with but I think at this point in my life the most upsetting thing is never knowing exactly how severe the pain/fatigue flare will be.
I'm not great with needles to begin with but I think at this point in my life the most upsetting thing is never knowing exactly how severe the pain/fatigue flare will be.
Doing the most spookiest scariest thing ever tonight
I'm getting vaaaaaaaciiiiiiiiiinessssss 👻
I'm getting vaaaaaaaciiiiiiiiiinessssss 👻
November 1, 2025 at 7:51 AM
Had nervous sweats all day but I'm done with my spooky shots for another year.
I'm not great with needles to begin with but I think at this point in my life the most upsetting thing is never knowing exactly how severe the pain/fatigue flare will be.
I'm not great with needles to begin with but I think at this point in my life the most upsetting thing is never knowing exactly how severe the pain/fatigue flare will be.
Doing the most spookiest scariest thing ever tonight
I'm getting vaaaaaaaciiiiiiiiiinessssss 👻
I'm getting vaaaaaaaciiiiiiiiiinessssss 👻
October 31, 2025 at 4:32 PM
Doing the most spookiest scariest thing ever tonight
I'm getting vaaaaaaaciiiiiiiiiinessssss 👻
I'm getting vaaaaaaaciiiiiiiiiinessssss 👻
Reposted by Aiure
With #Sinners back in theaters today, thought I'd reshare the article I wrote about the Choctaw Vampire Hunters and why that moment didn't NEED to be centered more even tho we would all love to see more of their story.
redpopnews.com/sinners-give...
#redpopnews
redpopnews.com/sinners-give...
#redpopnews
Sinners Gives Us Vampires, Music, and a Moment of Indigenous Power We Can’t Ignore
Set in 1932 Mississippi, Sinners is a haunting, atmospheric tale rooted in the music, spirituality, kinship, and resilience of Black Southern communities. But Coogler threads a deeper, more violent cu...
redpopnews.com
October 31, 2025 at 2:53 PM
With #Sinners back in theaters today, thought I'd reshare the article I wrote about the Choctaw Vampire Hunters and why that moment didn't NEED to be centered more even tho we would all love to see more of their story.
redpopnews.com/sinners-give...
#redpopnews
redpopnews.com/sinners-give...
#redpopnews
The average sleep quality score on my Samsung Health app has been the highest ever this week - I started tracking about 3yrs ago. So the new bed is clearly doing its job.
Despite this, I've been seriously struggling with low energy. That's chronic illness for you though
Despite this, I've been seriously struggling with low energy. That's chronic illness for you though
October 28, 2025 at 9:03 PM
The average sleep quality score on my Samsung Health app has been the highest ever this week - I started tracking about 3yrs ago. So the new bed is clearly doing its job.
Despite this, I've been seriously struggling with low energy. That's chronic illness for you though
Despite this, I've been seriously struggling with low energy. That's chronic illness for you though
I was in a cleaning mood and was prepped and committed to get into it, but then got winded picking a paper bag up off the floor so guess that's not happening today 😮💨 #LongCovid
October 26, 2025 at 10:24 PM
I was in a cleaning mood and was prepped and committed to get into it, but then got winded picking a paper bag up off the floor so guess that's not happening today 😮💨 #LongCovid
Love love love when I discover a singular zit in the morning, slap a pimple patch on it, and then discover 5 more that decided to crop up by day's end 🙃
October 24, 2025 at 1:56 AM
Love love love when I discover a singular zit in the morning, slap a pimple patch on it, and then discover 5 more that decided to crop up by day's end 🙃
IT IS DONE!
It's a hilariously huge king size bed in a teeny tiny bedroom but we have so much more room to sleep now so I don't care. My restless legs are finally free to flail without disturbing my SO.
Wondering how long before the cats destroy the fabric on the frame lol
It's a hilariously huge king size bed in a teeny tiny bedroom but we have so much more room to sleep now so I don't care. My restless legs are finally free to flail without disturbing my SO.
Wondering how long before the cats destroy the fabric on the frame lol
October 22, 2025 at 7:20 AM
IT IS DONE!
It's a hilariously huge king size bed in a teeny tiny bedroom but we have so much more room to sleep now so I don't care. My restless legs are finally free to flail without disturbing my SO.
Wondering how long before the cats destroy the fabric on the frame lol
It's a hilariously huge king size bed in a teeny tiny bedroom but we have so much more room to sleep now so I don't care. My restless legs are finally free to flail without disturbing my SO.
Wondering how long before the cats destroy the fabric on the frame lol
Got a nice funky bed frame, and it's missing the instructions 🤦♀️ we couldn't find anything online so we reached out to the manufacturer. Hopefully they'll just send us a pdf in a couple days.
We got an Endy to go with it, so I guess floor mattress it is for now lol
We got an Endy to go with it, so I guess floor mattress it is for now lol
October 19, 2025 at 1:14 AM
Got a nice funky bed frame, and it's missing the instructions 🤦♀️ we couldn't find anything online so we reached out to the manufacturer. Hopefully they'll just send us a pdf in a couple days.
We got an Endy to go with it, so I guess floor mattress it is for now lol
We got an Endy to go with it, so I guess floor mattress it is for now lol
Shoutout to the UPS delivery guy for bringing a 115lb package directly into my apartment 🥰
I've had consistently shitty experiences with UPS deliveries in the past, spanning decades and cities, so it's pretty fucking amazing to finally have a positive experience.
I've had consistently shitty experiences with UPS deliveries in the past, spanning decades and cities, so it's pretty fucking amazing to finally have a positive experience.
October 16, 2025 at 9:00 PM
Shoutout to the UPS delivery guy for bringing a 115lb package directly into my apartment 🥰
I've had consistently shitty experiences with UPS deliveries in the past, spanning decades and cities, so it's pretty fucking amazing to finally have a positive experience.
I've had consistently shitty experiences with UPS deliveries in the past, spanning decades and cities, so it's pretty fucking amazing to finally have a positive experience.
I know the reviews for Wayward haven't been the greatest, and I'm no critic, but I thought Mae Martin's work was perfectly executed. It's been several days since I finished it and I'm still thinking about it.
October 12, 2025 at 8:36 PM
I know the reviews for Wayward haven't been the greatest, and I'm no critic, but I thought Mae Martin's work was perfectly executed. It's been several days since I finished it and I'm still thinking about it.
Time for another exciting round of "was that gunfire or fireworks" yaaay 😑
October 12, 2025 at 7:33 AM
Time for another exciting round of "was that gunfire or fireworks" yaaay 😑
Over the last few months I compiled a list on my phone notepad of reasons my SO and I left our last home. It's nearly 7 pages long.
In under 7mo our lives were upended, privacy and dignity trod upon, our family's safety disregarded, under the guise of a friend's helping hand.
In under 7mo our lives were upended, privacy and dignity trod upon, our family's safety disregarded, under the guise of a friend's helping hand.
October 8, 2025 at 6:46 PM
Over the last few months I compiled a list on my phone notepad of reasons my SO and I left our last home. It's nearly 7 pages long.
In under 7mo our lives were upended, privacy and dignity trod upon, our family's safety disregarded, under the guise of a friend's helping hand.
In under 7mo our lives were upended, privacy and dignity trod upon, our family's safety disregarded, under the guise of a friend's helping hand.
October 7, 2025 at 7:05 PM