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SEDSConnective

@sedsconnective.org

1.8K followers 170 following 570 posts

The foremost hypermobility neurodivergence community charity BrainBodyMind AUTISM ADHD DYSPRAXIA TS DYSLEXIA EDS HSD pain Chair @JGjanegreenmbe.bsky.social Patron @bendybrain.bsky.social Web: www.sedsconnective.org Link: https://linktr.ee/SEDSConnective

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SEDSConnective @sedsconnective.org · Apr 9

Neurodivergence ♾️
We have pioneered these connections as the leading charity as it has been misunderstood or diagnostically misattributed for so long! Read more www.sedsconnective.org 🙏
#brainbody #ADHD #Autism #dyspraxia #dyslexia #dyscalculia #TS #hypermobility #EDS #HSD #NothingAboutUsWithoutUs

An infographic from SEDSConnective titled "Neurodivergence" with overlapping colorful brain illustrations representing different neurodivergent conditions: Autism (green), AD(H)D (blue), Tourette’s (orange), Dyscalculia (purple), Dyslexia (pink), and Dyspraxia (red). Each brain lists associated strengths:

Autism: Memory, Fine detail thinking, Passion, Creativity
AD(H)D: Creativity, Energetic, Verbal skills
Tourette’s: Interpersonal skills, Planning strengths, Hyperfocus
Dyscalculia: Verbal skills, Empathy, Intuition
Dyslexia: Problem solvers, Visual thinkers, Observant, 3D thinkers
Dyspraxia: Empathy, Intuition, Problem solving
In the center, a blue circle reads: “Neurodivergence is having a brain that behaves, learns and processes differently from the neuromajority.”
Text at the top states:

“It is likely that connective tissues are different than the general population in some of these neurodivergences”
“You can also have acquired neurodivergence”
Logos and credits are at the bottom for SEDSConnective, Jane Green, Mary Colley, and Joseph Aquilina.

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Reposted by SEDSConnective

Hakim Remastered Edition 🏳️‍🌈🎓 @alsagone.bsky.social · 10h

I relate so much to this

I graduated last year after battling with depression and autism burnout throughout my entire education - with the goal of getting a Dream Job maintaining me afloat

And now I'm just: unemployed because apparently, entry-level coding jobs don't exist anymore 😔

Nicole Holliday @mixedlinguist.bsky.social · 1d

One surprisingly heartbreaking thing about living in these times is seeing young people who finally made it to college/graduated/got a job/achieved the thing they’ve worked so hard for… just watch their opportunities disappear. And it’s even worse because absolutely none of this had to be happening.

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SEDSConnective @sedsconnective.org · 10h

Did you know about our ADHD work 🙂

SEDSConnective @sedsconnective.org · 12h

Have you heard of our charity ? We have pioneered the issues we have as a community charity with health education and neurology (2018) due to the physical cooccurring health issues evidenced by our Patrons, specialists and our founder Jane Green. We are sorry your son is suffering :(

Reposted by SEDSConnective

Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 1d

Looking forward to the live #ADHD women summit hybrid event www.eventbrite.co.uk/e/the-adhd-w...

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Reposted by SEDSConnective

Structured Success @structuredsucc.bsky.social · 1d

The ADHD experience of being entirely and completely sure that you have more than enough time to do the thing...

right up until panic sets in and you realize you most definitely do not

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SEDSConnective @sedsconnective.org · 1d

It helped us pioneer neurodivergence and hypermobility without any other resources money or connections or belief into now the foremost global charity.

SEDSConnective @sedsconnective.org · 4d

Today is #WorldMentalHealthDay
If you’re looking for free mental health support, help is available 💚

Our partners at UOK offer local, confidential and free resources for anyone who needs to talk or find guidance.

Visit www.uok.org.uk to learn more!

#WMHD2025 #UOKBrightonHove

SEDSConnective @sedsconnective.org · 4d

As today is World Mental Health Day, we are proud to be partners with UOK Brighton and Hove www.uok.org.uk 🙏

SEDSConnective @sedsconnective.org · 5d

Yes!

SEDSConnective @sedsconnective.org · 5d

We’ve been asked to share this autistic survey !

Are you autistic
18 or over?
Do you want to feed back on your care over the last 12 months?

OR
a radiographer experience of radiography or radiotherapy as a patient

20-minute, online, anonymous survey
For autistic adults
tinyurl.com/5x89thpb

SEDSConnective @sedsconnective.org · 5d

Hopefully more will be connected

SEDSConnective @sedsconnective.org · 6d

This is because of the latest research showing how jhypermobility and variant connective tissue is often found in people with long Covid even if they were not aware of it before.

The Sick Times @thesicktimes.org · 6d

Getting diagnosed with hypermobility can help some people with Long COVID. Upcoming guidelines may make it easier. Read more from @marmb.bsky.social: bit.ly/3VVXSf6

Graphic with a zebra-print background, representing EDS awareness. At the center of the image, there is a plus icon for healthcare offset with cartoon representations of the virus SARS-CoV-2. The text reads, “The Sick Times. Getting diagnosed with hypermobility can help some people with Long COVID. Upcoming guidelines may make it easier. By Margot Armbruster.”

Key points you should know:

Current diagnostic criteria for hypermobile Ehlers-Danlos syndrome (hEDS), a common comorbidity of Long COVID, are restrictive. Many people receive a diagnosis of hypermobility spectrum disorder (HSD) instead, but say doctors don’t take HSD as seriously as hEDS.

The Ehlers-Danlos Society is developing new hEDS criteria that will be released in 2026. Some experts think the new criteria may enable more patients to get an hEDS diagnosis.

Experts are also debating whether hypermobility is primarily a genetic condition or could also be caused by immune reactions to triggers like toxins and viral infections, including SARS-CoV-2.

People who are able to show how hypermobility affects their daily activities and interacts with their other conditions may be able to secure disability benefits or accommodations at work.

Moving forward, the Ehlers-Danlos Society will continue to incorporate patient feedback and scientific research into the forthcoming criteria.

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SEDSConnective @sedsconnective.org · 6d

3 years ago!
You can find the education paper here 👉 www.tandfonline.com/.../10.../13...

@jgjanegreenmbe.bsky.social @bendybrain.bsky.social

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SEDSConnective @sedsconnective.org · 8d

“Why did that hurt so much?”
Others might say you’re overreacting.
But they don’t see the storm inside.

www.sedsconnective.org/post/rejecti...

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SEDSConnective @sedsconnective.org · 8d

Thank you and Hypermobility (EDS HSD) can impact every single system in the body but often misconstrued as environmental or mental health issues only. It often affects us more after infections from illness, injury or viruses like Post Covid-19.

SEDSConnective @sedsconnective.org · 8d

A big health study looked at how common a condition called hypermobility Ehlers-Danlos syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) is in transgender and genderdiverse or gender expansive (TGD) people compared to cisgender people www.sedsconnective.org/research
Tabernacki et al (2025)

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SEDSConnective @sedsconnective.org · 10d

A brilliant advocate, leader and person for our charity

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Reposted by SEDSConnective

Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 10d

Two years ago today, I was honoured to receive my MBE for services to neurodivergent people and those with joint hypermobility conditions and Ehlers-Danlos syndromes.

This moment was not just personal but a milestone for our community. Since then,

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SEDSConnective @sedsconnective.org · 13d

SEDSConnective
We Are All This +
OCTOBER is Awareness for month, Week, Day
www.sedsconnective.org

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SEDSConnective @sedsconnective.org · 14d

SEDSConnective were delighted to open the Gofalwyr Ceredigion Carers Connecting Carers conference events at Prifysgol Aberystwyth University.
It was a great event and @jgjanegreenmbe.bsky.social has kindly offered to do a free online one event as well so no one will miss out! 🦓♾️

SEDSConnective @sedsconnective.org · 17d

Autism study

Does your autistic/ neurodivergent child have trouble sleeping ? ✅

2-15 years and under a Dingley consultant? ✅✅

Email [email protected] for more information or use the flyer

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SEDSConnective @sedsconnective.org · 18d

📢SEDSConnective Newsletter!
Sign up as a member and subscribe to our monthly newsletter!
➡️Register as a member here: sedsconnective.org/membership
➡️Sign up to the newsletter here: sedsconnective.org - scroll to the bottom of the page to sign up!

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Reposted by SEDSConnective

Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 20d

At @SEDSConnective, we advocate for accurate information, compassionate care and better awareness of the overlap between neurodivergence, hypermobility and co-occurring conditions.

Everyone deserves to be supported without needing to mask pain, fear, shame or misinformation.

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Reposted by SEDSConnective

Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 20d

We want to be clear: this is misinformation that risks further stigma and harm to neurodivergent people and their families. Research continues into the causes of neurodivergence, but

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Reposted by SEDSConnective

crawleycaction.bsky.social @crawleycaction.bsky.social · 20d

Do you have pain, fibromyalgia, tiredness, allergies or stomach issues?
Are you neurodivergent or have neurodivergent children?
No diagnosis needed.
Next Support Meeting by @sedsconnective.org is TOMORROW, 7-8.30pm at Crawley RH10 3NQ.
More here - www.sedsconnective.org/event-detail...?

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