NativeBio Data Consortium
@nativebio.bsky.social
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First Indigenous and independent genomic biodata repository, health research, education, and training center on sovereign land. 501 (C)(3) non-profit. www.nativebio.org / Tribal Data Repository d4itdr.org @Indigidata @SENAHD
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Our team is Legend (wait for it) dary! Ohio State, Stanford, UW Madison, UW Seattle, UC Santa Cruz, Arizona State & of course the Native Bio Data Consortium within the borders and legal jurisdiction of the Cheyenne River Lakota Nation! Woop woop! First time ever! The FOUR BANDS lead the way again!
A Tribal data repository to advance Indigenous health and sovereignty - Nature Genetics
We present the first federally funded Tribal data repository — the Data for Indigenous Implementations, Interventions, and Innovations Tribal Data Repository. This repository takes a revolutionary app...
www.nature.com
Reposted by NativeBio Data Consortium
Out today via @natgenet.nature.com, the first federally funded #Tribal #data repository, a revolutionary approach to data management and applied/operationalization of IDSov @d4itdr.bsky.social. Also, if you are at #ASHG25, come see us this morning in 205ABC
www.nature.com/articles/s41...
Reposted by NativeBio Data Consortium
Reposted by NativeBio Data Consortium
Please consider adding alt text to posts with images as folx with vision loss & other disabilities deserve equitable access to information, & you can even update your settings on BlueSky so that you cannot post images without alt text, so you are prompted to add it if you might otherwise forget! 🙏🏽🙏🏽🙏🏽
Reposted by NativeBio Data Consortium
For those interested in #Indigenous #Genomics and #ASHG25 in Boston, here are some interested posters/talks/events coming out of the Tsosie Lab, @nativebio.bsky.social, and @d4itdr.bsky.social. For those looking for Friday plans, attend our Ancillary Event, debuting a #Tribal #data repository!
Native Bio is here for you. #HappyIndigenousPeoplesDay!
BioResource rules need to help! "The task now is to ensure that the Treaty doesn’t just become a tool to justify & propel economic exploitation while only including clauses related to IPLCs as tokens of inclusivity by making them guests in their own house." journals.law.harvard.edu/hrj/2023/10/...
Common Heritage of Mankind at the Expense of Indigenous People’s Rights? BBNJ Treaty and Beyond – Harvard Human Rights Journal
journals.law.harvard.edu
If you're a data nerd and Indigenous, don't wait! Submit a presentation abstract for USIDSN's April Summit in Tucson, AZ. It was blockbuster in 2024, it portends to be mind-blowing in 2026! Deadline is Oct 30th, 2025. s2.goeshow.com/usidsn/summi...
Abstract Submission
s2.goeshow.com
We love promoting Indigenous success and our native relatives all over the world when they find true freedom! “[Poor health has to do with] the clear link between chronic disease & the history of colonisation and systemic racism from which this disadvantage grew." www.thelancet.com/journals/lan...
Alex Brown: fighting for the health of Indigenous Australians
There are stark health differentials between Indigenous and non-Indigenous Australians. Aboriginal and Torres Strait Islander people live 10 years less than the national average—15 years less for thos...
www.thelancet.com
Reposted by NativeBio Data Consortium
Had this conversation w/ a staff member this morning. There is the Barker Hypothesis, Blue Zones, the Mexican health paradox, the Exposome, the microbiome, the proteome & Social Determinants of Health that all have had better predictions on health than genetics. www.sciencedirect.com/science/arti...
Language improves health and wellbeing in Indigenous communities: A scoping review
Indigenous languages in Australia, Canada, New Zealand and the United States are endangered due to colonial policies which promote English language do…
www.sciencedirect.com
Reposted by NativeBio Data Consortium
1/3 There are at least 3 types of erasure via data 1) Data not collected because we’re too small a population, we don’t matter to economics or politicians and/or lumped with OTHER groups 2) Data is collected and is either not used, ignored or used to avoid accountability and action & lastly
Reposted by NativeBio Data Consortium
Indigenous Data sovereignty is the key. We told you a long time ago that #opendataistheft and dangerous because bad actors often look professional and rational
Reposted by NativeBio Data Consortium
Appreciate these insights from @emollick.bsky.social.

But the "wizard problem" isn't that AI is too opaque. It's that we're designing systems that hide their processes. We could build AI that shows its work, explains, and lets us intervene. Instead we're choosing black boxes and calling it magic.
Mollick argues we are drifting from co-intelligence to wizards. Strong results, opaque steps. I try to ask for receipts and name what must stay in my hands. Worth reading for #AI practice.
www.oneusefulthing.org/p/on-working... #Writing
On Working with Wizards
Verifying magic on the jagged frontier
www.oneusefulthing.org
Reposted by NativeBio Data Consortium
Yes Joseph Yracheta, famous in Viking mythology and other prophetic texts will be speaking over the digital pacifier on Wednesday
This Wed. Oct, 8: Join Jane Anderson (@localcontexts.bsky.social) @joseph-yracheta.bsky.social @kvrouwen.bsky.social & @1nativesoilnerd.bsky.social for a discussion of Data Governance & Indigenous Sovereignty w/moderator Melissa Stoner. Free for NISO members: niso.org/events/data-...
NISO Webinars logo with URL: http://niso.org/events
Take a look. NativeBio's mission is to protect all Indigenous resources...human, non-human, man-made, natural, products of irresponsible pollution or new biological interactions due to capital extraction and migration. They all belong to Native peoples. www.thegef.org/what-we-do/t...
Biodiversity Beyond National Jurisdiction
www.thegef.org
Reposted by NativeBio Data Consortium
Indigenous Data Sovereignty is a human right. It represents the future economic viability and political power needed for more basic components of culture, spirituality and land-based occupation/residence to continue unadulterated by the West. Stop labeling Indigenous Professionals as unethical.
We see the Beautiful Artwork of American Indian Science and Engineering Society (AISES). We hope they appreciate the artwork and #IDSov work of Native BioData Consortium
This is just in, Joseph Yracheta has been invited to be the keynote speaker at the University of Idaho's Biennial Tribal Summit. The title of his talk will be the "Data and Tribal Economies: Securing Our Cultural Future Through Sovereignty"
Indigenous Data Sovereignty is so important it's on everyone's lips at #AISES! Even the Cheyenne River Sioux Nation Chairman was up on stage talking about the future of research, data control, sovereignty & economics! I also met the famous Muscogee Geneticist, Dr. John Burnett! #IDSOV is survival.
Native Bio and their project (and partners) @d4itdr.bsky.social knocking it out of the park #AISES Dr. Kali Dale, Rebecca Dickinson (both Ojibwe) and Sakiah Perez (Borikua) demonstrating how our vision of a National Tribal Data Repository would work!
Reposted by NativeBio Data Consortium
When looking for data management solutions, Tribes can consider different models. In this video, D4I provides summaries of decentralized, federated, and centralized data systems. youtu.be/RNvNqoAXSGo?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty
D4I Tribal Data Repository - How Data Sharing Systems Work
YouTube video by D4I TDR
youtu.be