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meassociation.org.uk
ME Association
@meassociation.org.uk
670 followers 140 following 830 posts
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change. RPs do not necessarily mean endorsement. https://linktr.ee/meassociation
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
1/4 About the ME Association: Revolutionising Research into ME/CFS

The ME Association was founded in 1980 & quickly understood there was a desperate need for medical research into ME/CFS, a complex multi-systemic disease & from 1989-2024 we've invested over £2.6M.

meassociation.org.uk/research/
IMAGE DESCRIPTION: A range of hexagonal images relating to research. Title: About the ME Association: Research. The ME Association and new Ramsay Research Logo (bottom) IMAGE DESCRIPTION: A range of hexagonal images relating to research with a graphic showing the MEA Research Committee. The ME Association and new Ramsay Research Logo (bottom)
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meassociation.org.uk
ME Association @meassociation.org.uk · 2h
Book: Saga of Royal Free Disease by Dr Melvin Ramsay

Dr Ramsay did more than any other physician to legitimise this devastating disease. Therefore, his book comes highly recommended

eBook £5: meassociation.org.uk/hbhi

Hard Copies - £6- available via the MEA shop:

meassociation.org.uk/sfrd
IMAGE DESCRIPTION: An image if a person reading an eBook with the cover of the book to the left-hand side. Amazon logo and eBook £5 in the top corner. The ME Association Logo (bottom right)
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meassociation.org.uk
ME Association @meassociation.org.uk · 5h
2/2 He [Dr Ramsay] helped establish the MEA which was founded in around 1980 & continued to be a stalwart advocate for people with this disease, until his death in 1990.

The Ramsay Research Fund was established to honour his commitment to the patient community.

meassociation.org.uk/research/ram...
IMAGE DESCRIPTION: A range of hexagonal images relating to research with a photo of Dr Melvin Ramsay. Title: About Dr Melvin Ramsay. The ME Association and new Ramsay Research Logo (bottom)
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meassociation.org.uk
ME Association @meassociation.org.uk · 5h
1/2 About Ramsay Research Fund & Dr Melvin Ramsay

The ME Association(MEA) funds its medical research via the Ramsay Research Fund (a ring-fenced fund).

Dr Melvin Ramsay brought the neurological disease Myalgic Encephalomyelitis to the attention of the medical profession in 1955.
IMAGE DESCRIPTION: A range of hexagonal images relating to research and the image from Dr Melvin Ramsay's book. Title: About the Ramsay Research Fund. The ME Association and new Ramsay Research Logo (bottom)
meassociation.org.uk
ME Association @meassociation.org.uk · 7h
Portugal: 2nd International Conference: Clinical and scientific advances in ME/CFS and Long Covid

There will be two presentations from members of the team at the UK ME/CFS Biobank;

- Eliana Lacerda (Faculty of Infectious & Tropical)
- Luís Nacul (LSHTM)

Find out more: meassociation.org.uk/htvt
Portugal: 2nd International Conference: Clinical and scientific advances in ME/CFS and Long Covid - The ME Association
Introduction (from website) Taking place on November 12-13, 2025, in […]
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 1d
Do you have Diabetes and ME/CFS or Long Covid?

Please consider completing our survey to help us better understand your experiences of these conditions:
https://meassociation.org.uk/zmq1 

#pwME #MECFS #LongCovid #Diabetes
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meassociation.org.uk
ME Association @meassociation.org.uk · 1d
David Tuller interviews Professor Chris Ponting about the new PRIME research project into ME/CFS, which is being conducted by the University of Edinburgh.

https://www.youtube.com/watch?app=desktop&v=1dgKMO0tPBw

#pwME #MECFS #MyalgicEncephalomyelitis #MECFSResearch
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meassociation.org.uk
ME Association @meassociation.org.uk · 1d
Again we are sorry about this unavoidable, temporary, situation. Direct messaging will be back up and running as soon as possible.
meassociation.org.uk
ME Association @meassociation.org.uk · 1d
We are so sorry but due to staffing issues we have to temporarily close social media direct messaging. If you have recently contacted us this way, please do get in touch again by email or the MEC phone line.

Phone: 0808 801 0484
Email: meconnect@meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 1d
Oxfordshire ME Group for Action are hosting a night with Prof. Karl Morton & colleagues to discuss their latest research.

Event is on Thurs 13th Nov at John Radcliffe Hospital, Headington & is free to attend, either in person or online.

Sign up: https://tinyurl.com/yvmd96xv

#MECFS #pwME
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
4/4 - continuing to provide significant funding for research investment

Read more here: meassociation.org.uk/research/ram...

#MECFS #Research
About the Ramsay Research Fund - The ME Association
The ME Association funds its medical research via the Ramsay […]
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
3/4 - using research to better understanding ME/CFS & LC
- supporting researchers by assisting with pilot studies & replication efforts & supporting grant applications to MRC & NIHR.
- large-scale biomedical studies & clinical trials and feel they are necessary to advance research into this disease
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
2/4 The MEA funds medical research via the Ramsay Research Fund. Research investment has been championed by Dr Shepherd chair of research committee.

We are committed to:

- prioritising investment in high-quality medical research.
- continuing to build on a commendable record of funding research
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
1/4 About the ME Association: Revolutionising Research into ME/CFS

The ME Association was founded in 1980 & quickly understood there was a desperate need for medical research into ME/CFS, a complex multi-systemic disease & from 1989-2024 we've invested over £2.6M.

meassociation.org.uk/research/
IMAGE DESCRIPTION: A range of hexagonal images relating to research. Title: About the ME Association: Research. The ME Association and new Ramsay Research Logo (bottom) IMAGE DESCRIPTION: A range of hexagonal images relating to research with a graphic showing the MEA Research Committee. The ME Association and new Ramsay Research Logo (bottom)
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
"People living with ME/CFS and LC ... often use pacing with a heart rate monitor (HRM) to minimize time spent above the anaerobic threshold; however, there is limited research on the feasibility and efficacy."

https://meassociation.org.uk/d7qw

#MECFS #pwME #MyalgicEncephalomyelitis #LongCovid #PEM
Research: Pacing with a heart rate monitor for people with ME/CFS and Long Covid: a feasibility study - The ME Association
People living with ME/CFS and LC frequently live with post-exertional […]
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
Share the season's greetings whilst also supporting the MEA by purchasing our beautiful Christmas cards - 10 cards for only £4.50 (with free shipping!) 

https://meassociation.org.uk/product-category/christmas/ 

#MEAssociation #pwME #MECFS #CharityCards #ChristmasCards #CharityChristmasCards
IMAGE DESCRIPTION: Photo of a Christmas card (featuring an image of a multi-coloured Christmas Tree and the words 'Merry & Bright') surrounded by golden baubles, with a glowing Christmas tree in the background. MEA logo top right. IMAGE DESCRIPTION: Photo of a Christmas card (featuring an image of the three wise men worshipping baby Jesus) with a glowing Christmas tree in the background. MEA logo top right. IMAGE DESCRIPTION: Photo of a Christmas card (featuring an illustration of a snowy village) with a fir garland and red baubles in the background. MEA logo top right.
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
BBC News reports on Job Centre's that are struggling to support those with with long-term health conditions who may require a level of flexibility or additional support.

Read the article on BBC News website
IMAGE DESCRIPTION: An image of a lady talking to a disabled person about employment needs. Title: BBC News: Stretched job centre staff struggling to get disabled people into work. The ME Association Logo (bottom right)
meassociation.org.uk
ME Association @meassociation.org.uk · 2d
Rest Less article on ME/CFS

The ME Association and Dr Charles Shepherd has worked closely with the team at restless to ensure their article carries accurate and up-to-date information.

To read the article, please search for Rest Less and the title used in the graphic.

#MECFS #MEAssociation
IMAGE DESCRIPTION. A lady ill in bed to represent having ME/CFS. Title: Rest Less: Myalgic encephalomyelitis (ME) – causes, symptoms, and ways to cope. The ME Association Logo (bottom right)
meassociation.org.uk
ME Association @meassociation.org.uk · 5d
SCOTLAND: Scottish Government have re-announced funding for "Long COVID and similar health conditions"

Read a summary of the situation on the website blog here:

meassociation.org.uk/mcmc
Scottish Government have re-announced funding for "Long COVID and similar health conditions"  - The ME Association
Last December, the Scottish Government included in it's budget for […]
meassociation.org.uk
meassociation.org.uk
ME Association @meassociation.org.uk · 5d
BMJ Open: Return to work with long COVID: a rapid review of support and challenges

Dr Charles Shepherd, MEA Hon Medical Adviser says:

"An academic summary of support and challenges. But not really telling us anything we don't already know..."
meassociation.org.uk
ME Association @meassociation.org.uk · 5d
BMJ Open: Return to work with long COVID: a rapid review of support and challenges

Objectives To explore existing evidence for the provision of support for return to work (RTW) in long COVID (LC) patients and the barriers & facilitators to taking up this support.

bmjopen.bmj.com/content/15/1...
Return to work with long COVID: a rapid review of support and challenges
Objectives To explore existing evidence for the provision of support for return to work (RTW) in long COVID (LC) patients and the barriers and facilitators to taking up this support. Design A rapid r...
bmjopen.bmj.com
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meassociation.org.uk
ME Association @meassociation.org.uk · 5d
BMJ Open: Return to work with long COVID: a rapid review of support and challenges

Objectives To explore existing evidence for the provision of support for return to work (RTW) in long COVID (LC) patients and the barriers & facilitators to taking up this support.

bmjopen.bmj.com/content/15/1...
Return to work with long COVID: a rapid review of support and challenges
Objectives To explore existing evidence for the provision of support for return to work (RTW) in long COVID (LC) patients and the barriers and facilitators to taking up this support. Design A rapid r...
bmjopen.bmj.com
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meassociation.org.uk
ME Association @meassociation.org.uk · 5d
ME Connect (helpline & message service) is available via our freephone number to offer support and information.

You can also direct message us via Instagram, Facebook & X, or email us at [email protected]

** Freephone number - 0808 801 0484 **

meassociation.org.uk/me-connect/
IMAGE DESCRIPTION: A young lady sitting on the bed looking at her mobile phone. ME CONNECT We're here for you. We understand ME/CFS/LC/PVFS. If you need help or want to talk, contact us. 0808 801 0484. Email: meconnect@meassociation.org.uk Here to listen - Safe environment - Vital support
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meassociation.org.uk
ME Association @meassociation.org.uk · 6d
If you are a HCP who would like to receive the magazine, or if you would like to nominate your GP to be added to the magazine mailing list, you can do so here:
 
https://meassociation.org.uk/hcpr
 
You can now get a online version of the magazine if you are a HCP outside of the UK!
Health and Social Care: ME Medical - The ME Association
Sign up below to receive ME Medical, the free quarterly […]
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 6d
ME Medical is our quarterly magazine designed for healthcare professionals, featuring the latest news, research developments, and medical information on ME/CFS. The most recent issue included a copy of our ME/CFS Management poster.

#pwME #MECFS #MyalgicE #HealthcareProfessionals #MedicalEducation
IMAGE DESCRIPTION: Photo of the ME Medical Magazine poster, with the ME/CFS Management Infographic poster behind it. Wording - ME Medical, the magazine for healthcare professionals
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meassociation.org.uk
ME Association @meassociation.org.uk · 6d
#GiftAidAwarenessDay - 9th Oct 2025!

Please remember to click #GiftAid on donations, as the ME Association receives 25p more for every pound you donate.  

Donate: https://meassociation.org.uk/donate/

#pwME #MECFS #Fundraising #GiftAid #GAD #TickTheBox
IMAGE DESCRIPTION: Graphic of someone ticking a box. Heading - Remember to... tick the box. Gift Aid Awareness Day. All you have to do is ... #TickTheBox Image description: Graphic of a 'donation, with a plus sign and then a graphic representing 'tick the box', then an equals sign and then a gift box with the wording '25% extra'. Gift Adi. All you have to do is #TickTheBox. It doesn't cost you a penny extra to #TickTheBox and it will help us to help more.
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meassociation.org.uk
ME Association @meassociation.org.uk · 6d
Survey: PEM

DSQ-PEM 2 Survey - DePaul University
www.dsqpem2.com
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