Muscular Dystrophy Pakistan
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mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan
@mdpakistanorg.bsky.social
8 followers 14 following 92 posts
Our mission is to empower the muscular dystrophy community through education, advocacy, collaboration, and compassionate outreach.We actively engage with healthcare providers, researchers, policymakers, and global partners to improve the quality of Life.
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mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · 4d
About Dechene Muscular Dystrophy DMD.
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · 17d
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · 17d
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · 24d
Regarding LGMD Awareness Day of 30 September By Muscular Dystrophy Pakistan...

Thanks to EveryLife Foundation for Rare Diseases.
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · 25d
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · 26d
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · 27d
BMD Myth Vs Facts...
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Oct 3
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 29
Together we can Stronger.

#everylifefoundation
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 27
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 25
Let's comes to Join us on 30 September.

Together we are stronger...💪

#everylifefoundation
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 24
🌍✨ A Grateful Milestone ✨🌍

On behalf of Muscular Dystrophy Pakistan, we extend our heartfelt gratitude to EURORDIS – Rare Diseases Europe for welcoming us as an Associate Member. 💙

This membership is not just an achievement for our organization, but also a step forward...
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 23
🌍✨ Big News for Rare Disease Advocacy in Pakistan! ✨🌍

We are proud to share that Muscular Dystrophy Pakistan (MDP) has officially become an Associate Member of EURORDIS – Rare Diseases Europe as of 18 September 2025. 🎉

EURORDIS is a renowned European alliance of over 100 countries.
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 19
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 18
Dear Members of the Muscular Dystrophy Community in Sindh Pakistan

Muscular Dystrophy Pakistan (MDP) is pleased to invite you to participate in our Limb Girdle Muscular Dystrophy (LGMD) Awareness Day, which will be held on 30 September 2025 at the MDP Head Office, Thul, District Jacobabad, Sindh.
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 17
A Project by MAGIC PROJECT
A New Hope for Community of Muscular Dystrophies.
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 15
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 10
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 9
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 7
September is Muscular Dystrophy (MD) Awareness Month! 💚 Limb-Girdle Muscular Dystrophy (LGMD) is one form of muscular dystrophy.

Help raise awareness by sharing our posts! To learn more about LGMD.

#everylifefoundation
#LGMDawareness
#LgmdDay2025
#TogetherWeAreStronger
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 6
هي اسان جا نبي، ۽ اسين انهن جا امتي

امتي، تنهنجي قسمت تي لکين سلام۔۔۔
سرڪار جي آمد۔۔۔
دنيا جي پوري انسانيت کي نبي مرسل حضرت محمد ﷺ جي آمد واري ڏينهن جون لکين واڌايون
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 5
Together we are Stronger...
Mark up your Calendar 🗓️

#everylifefoundation
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 3
🌍 September is Newborn Screening Month 🌍

Early Detection, Brighter Futures

At Muscular Dystrophy Pakistan, we believe that every child deserves the best possible start in life. Newborn screening is a simple yet powerful test that can detect rare and genetic disorders.
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 2
Muscular Dystrophy Pakistan, we are committed to carrying this legacy forward. Throughout September, we join the international community in raising awareness, fostering understanding, and advocating for the rights and needs of individuals living with muscular dystrophy.
mdpakistanorg.bsky.social
Muscular Dystrophy Pakistan @mdpakistanorg.bsky.social · Sep 1
September is Muscular Dystrophy Awareness Month. 💚

This month, we’re sharing powerful stories, uplifting voices, and moments of hope from our incredible community. Together, we’ll raise awareness, inspire change, and show the strength that shines through every day.