Author | Lightnews

Libby Humphris @libbyhumphris.bsky.social · 23d

Having a rough time with my health recently. Infection-virus-flare-another infection. Today my "bad" eye has a weird sore patch developing, another "thing" to sort out. It's exhausting! Very grateful to Nurse Dog Luna keeping me company while I rest up.

Libby Humphris @libbyhumphris.bsky.social · 23d

It's so frustrating, I ran out last year and ended up in a flare, because of the exact same problem albeit a different hospital. Replying so you know you are not alone in this crazy system.

1 2

Libby Humphris @libbyhumphris.bsky.social · Aug 1

It was refreshing to meet with an anaesthetist yesterday at pre-op clinic who introduced me to the @sobauk.co.uk guidelines. I'd not come across them until now. Thank you for making this difficult time that little bit easier 🙏 #SharedDecisionMaking #PatientVoice #Thankyou

Reposted by Libby Humphris

Dr Victoria Shepherd @vickylshepherd.bsky.social · May 21

📢Developing recommendations for inclusive consent processes for trials

OPTIMISE is developing recommendations for designing consent processes for trials involving people with communication &/or capacity needs. We are inviting researchers to a workshop to agree key domains to include.

Info below:

Flyer for OPTIMISE workshop - developing recommendations for inclusive consent processes for trials - 8th July in Cardiff. Contact Dr Victoria Shepherd via email sheoherdvl1@cardiff.ac.uk

1 4 4

Reposted by Libby Humphris

Disability Wales @disabilitywales.bsky.social · Apr 11

📢We are recruiting!

We're looking for a disabled person to join us as Programme Co-ordinator.

This is an exciting opportunity to work alongside partner organisations to deliver the Equal Power Equal Voice programme.

Closing date: 9am on 22 April.
www.disabilitywales.org/vacancy-prog...

We are recruiting.

Programme Co-ordinator.

To ensure the next Equal Power Equal Voice programme cycle is efficient and effective, and provides the best possible experience to mentees and mentors.

Closing date: 9am on Tuesday 22nd April.

18 hours a week. Remote working with office base at Spark, Cardiff.

The EPEV and DW logos are in the top right corner.

1 5 1

Libby Humphris @libbyhumphris.bsky.social · Mar 30

A reminder on one of the hardest days of the year for me. It is never ok to ask someone when they are starting a family, never. Thinking of everyone struggling today. #ChildlessNotByChoice

1 2

Reposted by Libby Humphris

Co-Production Collective @coprocollective.bsky.social · Mar 25

Co-Production Collective is looking for someone to manage our projects with partners. If you are interested in co-production in research, policy and service development, we would like to hear from you!

Find out more about the role and how to apply in our blog: shorturl.at/AAPln

#coproduction

This image depicts a yellow piece of paper with letters cut out of it, reading "join us". The paper is on a green background.

7 6

Libby Humphris @libbyhumphris.bsky.social · Feb 24

Inspired by a talk given by @drmattmorgan.bsky.social a few weeks ago, I'm finally off the mark with my writing plan. Wishing you all a great week ahead.

On a coffee shop wooden table there is an iPad with a blank page open, a teal blue diary with light blue pen on top and a latte with a heart in the milk.

1 3

Reposted by Libby Humphris

Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · Feb 6

Have you heard of #Lleswyl? It’s the only inclusive virtual festival organised by @daringtodream.bsky.social. Many miss out on events and festivals due to illness, and that’s exactly why Lleswyl exists.

Get your free tickets now! www.eventbrite.co.uk/e/lleswyl-20...

Purple graphic for Lleswyl 2025 event on February 21. Includes colorful bursts, the tagline "Making Space to Talk," and website link: www.daringtodream.wales.

3 2

Libby Humphris @libbyhumphris.bsky.social · Feb 5

It's really tough to see the constant headlines on this topic.

You are not alone, my inbox is always open.

Frances Ryan @francesryan.bsky.social · Feb 5

Speculation about disability benefits can be deeply hard on your mental health.

If you’re struggling, please consider talking to a trusted person or the Samaritans. You can call them for free 24/7 on 116 123 or email [email protected]

You are not alone.

www.samaritans.org/how-we-can-h...

Contact Us

www.samaritans.org

Libby Humphris @libbyhumphris.bsky.social · Feb 5

Grateful to have Nurse Dog Luna keeping me company in my little home office this morning 🐾 She has no idea how important she is to my emotional health, join Luna and I at #Lleswyl2025 later this month to hear more on this. @daringtodream.bsky.social #DogSky #RescueDog

A Yorkshire terrier cross lies across a pile of blankets with their head resting on a pillow looking up at the camera.

1 1 7

Libby Humphris @libbyhumphris.bsky.social · Feb 5

I struggled to know who I was at the end of last year. With a few tweaks and working hard to hone down on what is really important to me, I am now much happier and more motivated than ever. Sometimes you have to take a step back to realise what it is you want.

1 1

Libby Humphris @libbyhumphris.bsky.social · Feb 5

Today, fab line up! #PxP #PatientEngagement

Dawn Richards, PhD @dawnrichards.bsky.social · Feb 4

📣 Need a good distraction for 1.5 hours this week? Join this amazing group of people tomorrow to learn more about their experiences in #PatientEngagement in research? if you can't join us live, it will be recorded. 👇 @alexhaagaard.bsky.social @francinebu.bsky.social

PxP (For Patients, By Patients) @pxphub.bsky.social · Feb 4

⭐Webinar reminder! Join us tomorrow, February 5th.

Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.

#PatientEngagement #PatientPartners #PPI #PxP25

3

Reposted by Libby Humphris

Daring to Dream @daringtodream.bsky.social · Feb 3

🌟 #Lleswyl2025 🎉 The only #inclusive virtual festival by @daringtodream.bsky.social, shining a light on adults with illness in #Wales.
Many miss out on events & festivals due to illness! Lleswyl comes to them! Get your FREE tickets now!
👉 Register on Eventbrite!
www.eventbrite.co.uk/e/lleswyl-20...

Lleswyl 2025

Daring to Dream's free, fantastic, fun and for everyone wellbeing festival! Livestreamed from 7pm 21st February 2025 from You Tube

www.eventbrite.co.uk

2 3

Reposted by Libby Humphris

Daring to Dream @daringtodream.bsky.social · Feb 2

Well said @hrhcatherinepow.bsky.social - this is exactly what we are saying @daringtodream.bsky.social. Emotional health and skills are being overlooked - we must get better at talking about feelings constructively #emotionalhealth and #emotionalskills matter.

www.bbc.co.uk/news/article...

Kate says emotional skills a priority for healthier society

The Princess of Wales launches a project calling for more emphasis on social and emotional skills.

www.bbc.co.uk

2 2

Libby Humphris @libbyhumphris.bsky.social · Feb 1

Sorry you had to wait longer, that is a ridiculous excuse from the first consultant 😡 Glad to hear the second took you seriously!

1

Reposted by Libby Humphris

Daring to Dream @daringtodream.bsky.social · Jan 31

#Lleswyl2025 - how about booking your tickets for a #WatchParty at #WalesMillenniumCentre?

Book to go along with a few friends? have a great night!

www.wmc.org.uk/en/whats-on/...

Lleswyl Watch Party

Lleswyl 2025: Top musical talent, transported from the festival field to Wales Millennium Centre!<br /><br /> <br /><br /> Lleswyl is Daring to Dream&#039;s free li…

www.wmc.org.uk

2 2

Libby Humphris @libbyhumphris.bsky.social · Jan 31

Happy Friday! I'm having a "rest day". I have to be really careful that I don't burn out. It's so tempting to carry on, I'm motivated, my brain is willing but my body needs to rest. If I don't listen to my body then I'll be out of action for weeks. Nurse dog Luna with me, as always. #mecfs #dogsky

A Yorkshire terrier cross is sat on a human bed looking at the camera, one ear up and one ear down. The duvet is white with blue geometric patterns. There are grey wardrobes in the distance.

1 11

Reposted by Libby Humphris

Daring to Dream @daringtodream.bsky.social · Jan 24

Good Morning! Have you heard of #Lleswyl2025?
Lleswyl means 'Wellbeing Festival' in Welsh.
We provide a great, free fun evening on 21 February 2025 from 7pm!
Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20...
Join us for a great night! YouTube channel: Lleswyl 2025.

2 4

Reposted by Libby Humphris

Daring to Dream @daringtodream.bsky.social · Jan 26

#Lleswyl2025 #inclusive #talented #diverse #LineUp.
FREE tickets www.eventbrite.co.uk/e/lleswyl-20...
In Wales 1.2 million live with at least one #longstanding #illness. #Lleswyl #festival brings #joyousevening to their home @dawnbowden.bsky.social @dalilatm.bsky.social @libbyhumphris.bsky.social

2 3

Libby Humphris @libbyhumphris.bsky.social · Jan 27

Nurse Dog Luna is never far from where I am, today she is snoozing under my desk. This afternoon I've been busy working on a few upcoming presentations. I was dreading another week of January, but an inspiring talk from @drmattmorgan.bsky.social has started this week off perfectly 💪 #PatientVoice

A Yorkshire terrier cross is asleep, laying stretched out on a collection of blankets.

1

Reposted by Libby Humphris

Alex Haagaard (they/them) @alexhaagaard.bsky.social · Jan 26

Lotta new folks here so I guess it's a good time to plug this webinar!

If you want to hear me talk about a bunch of light-hearted shit like temporal accessibility and hermeneutical (in)justice in patient engagement, sign up at the link.

PxP (For Patients, By Patients) @pxphub.bsky.social · Jan 10

Sign up for our webinar on Patient Partner Perspectives on Barriers & Facilitators to Patient Engagement in Research.

📅Date: February 5, 2025
⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC
🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration

#PatientEngagement #PxP

2025 Webinar Series. Webinar 4: Patient Partner Perspectives on Barriers and Facilitators to Patient Engagement in Research. With Alex Haagaard, Francine Buchanan, Linda Niksic, and Jim Mann. February 5, 2025 5:30-7:00 PM ET

3 10

Libby Humphris @libbyhumphris.bsky.social · Jan 26

Looking forward to #Lleswyl2025 next month. Tickets are FREE! #emotionalhealth #raisingawareness #chronicillness #maketimetotalk

Daring to Dream @daringtodream.bsky.social · Jan 24

Good Morning! Have you heard of #Lleswyl2025?
Lleswyl means 'Wellbeing Festival' in Welsh.
We provide a great, free fun evening on 21 February 2025 from 7pm!
Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20...
Join us for a great night! YouTube channel: Lleswyl 2025.

3

Libby Humphris @libbyhumphris.bsky.social · Jan 26

Please can you share link to recording when it becomes available? Sadly I can't make it to Bristol that evening.

Reposted by Libby Humphris

Elizabeth Blackwell Institute @ebibristol.bsky.social · Jan 22

Digital tools should make healthcare more efficient and accessible, but do they make everyone’s lives easier?

Join @trishgreenhalgh.bsky.social for 'Healthcare in the digital age: A new era of inequality?'
When: 3 Feb 2025, 18:30-20:00
Where: City Hall, Bristol
Free tickets: tinyurl.com/2pyn8w4b

Healthcare in the digital age: A new era of inequality?

We are delighted to welcome Professor Trish Greenhalgh to give the eleventh annual Elizabeth Blackwell lecture, Bristol on 3 February 2025.

tinyurl.com

8 7