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jkirkendall.bsky.social @jkirkendall.bsky.social · Jul 1

3 years ago I would have been posting about how much weight I could carry doing barbell squats. Today I'm happy to announce that I've graduated from the extra light exercise bands to the light exercise bands when I do my simple PT exercises

As long as it keeps me walking I'm happy!

#lupus

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jkirkendall.bsky.social @jkirkendall.bsky.social · Jun 26

Just read @miamingus.bsky.social's blog post on access intimacy. It explains why so many of us living with #lupus were devastated by @lupus.org's decision to scrub the LGBTQ community, and the Black and Brown community from their website.

leavingevidence.wordpress.com/2011/05/05/a...

Access Intimacy: The Missing Link

There are many ways to describe intimacy. For example, there’s physical intimacy, emotional intimacy, intellectual, political, familial or sexual intimacy. But, as a physically disabled woman, th…

leavingevidence.wordpress.com

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jkirkendall.bsky.social @jkirkendall.bsky.social · Jun 9

It appears that @lupus.org has removed the episode on Lupus and the LGBTQ community. It was Season 6, episode 3. There is no longer an episode 3, just a "bonus episode." If I'm missing something, can someone let me know? Genuinely hope I'm mistaken. #lupus #chronicillness #lgbtq #pridemonth

jkirkendall.bsky.social @jkirkendall.bsky.social · Apr 11

As the meds that I take for #lupus continue to help me feel better, I've come up against a paradox: I have more energy, but my body still demands that I move slowly.

Learning to separate "I have more energy" from "getting a lot done" has proved tricky, given years of training to be "productive."

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jkirkendall.bsky.social @jkirkendall.bsky.social · Mar 10

Ruth Marcus resigns resigns from @washingtonpost.com.

Top 'Washington Post' columnist resigns, accusing publisher of killing piece

www.npr.org/2025/03/10/n...

Top 'Washington Post' columnist resigns, accusing publisher of killing piece

Washington Post columnist Ruth Marcus resigned today, accusing the paper's publisher of killing her piece on owner Jeff Bezos' overhaul of its opinion pages.

www.npr.org

jkirkendall.bsky.social @jkirkendall.bsky.social · Mar 4

Ima gonna join you.

jkirkendall.bsky.social @jkirkendall.bsky.social · Feb 28

It’s a small action, but it is an action we can all take!

#WashingtonPost #BlackoutFriday

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jkirkendall.bsky.social @jkirkendall.bsky.social · Feb 27

It’s also a psychological issue. I asked my audiologist about the psychological needs of late defended adults and she responded by saying “there are no psychological needs. It’s just a matter of getting the right technology.”

Wrong.

jkirkendall.bsky.social @jkirkendall.bsky.social · Feb 27

I mean, as long as it doesn’t go against the free market or individual liberties! 🤦‍♂️

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jkirkendall.bsky.social @jkirkendall.bsky.social · Feb 25

Federal employees here in Washington D.C. have coined a new word to describe the current mood:

Angerxiety.

#FederalWorkers
#DOGE

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jkirkendall.bsky.social @jkirkendall.bsky.social · Feb 25

We lived with a Sufi when we were working with Roshi Glassman at the Greyston Foundatiom in New York. He was old, cantankerous, and not a fun roommate. However, he would move the furniture aside and whirl, and honestly, you could feel the environment shift when he started. It was mesmerizing.

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jkirkendall.bsky.social @jkirkendall.bsky.social · Feb 21

Your husband told me to follow you! 😊

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jkirkendall.bsky.social @jkirkendall.bsky.social · Feb 9

It’s hot chocolate day here, too!

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jkirkendall.bsky.social @jkirkendall.bsky.social · Feb 5

I love that story!

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jkirkendall.bsky.social @jkirkendall.bsky.social · Feb 5

My new hybrid is supposed to emit a noise if you step out of the car with the key fob and leave the (very silent) motor running. Except if you're deaf and can't hear it.

I left the car running for an hour.

In the driveway. 🤦‍♂️

#HearingLoss #Deaf #HardOfHearing

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jkirkendall.bsky.social @jkirkendall.bsky.social · Feb 1

It's been a week of intense crisis management in my D.C. psychotherapy office. "Dumpster fire" comes to mind. Hat's off to my fellow DMV psychotherapists who are navigating times that very little has prepared us for!

#Psychotherapy #counseling #DMV #WashingtonDC

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jkirkendall.bsky.social @jkirkendall.bsky.social · Jan 10

So great to see this! I've had to borrow a lot of vocabulary from the ME/CFS world to explain my lupus symptoms to my doctors. The post exertion malaise is so real for me, but seems far more common in ME/CFS world than in the Lupus SLE world.

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