Jijer
banner
jijer.bsky.social
Jijer
@jijer.bsky.social
270 followers 940 following 110 posts
Health care worker, rare disease patient, mother of bunnies.
Posts Media Videos Starter Packs
Yep my friends cant make orders for their vaccine lab at nih
This happened to me too, I’m volunteering with patient advocacy groups to get the word out, but it’s like screaming into a void because so many people are suffering across the country due to the current administration
That’s amazing!!! Thank you!
Omg yes, I was shocked how much “job coaching” cost my state when I saw the paperwork. They didn’t even help me find a job, they just changed some words on my resume 😭
I would really appreciate NOAA related news from this AltNOAA account. Please feel free to use a personal account to voice your personal views on current events. But if youre going to represent AltNOAA, please post relevant news. We rely on you to keep us updated on our jobs at NOAA.
I’m a patient living this nightmare lol 🙋🏻‍♀️
Are they doing a job fair or giving out resources for unemployed scientists?
He said what!?
Reposted by Jijer
Marco Rubio was my senator. He and his staff politely listened to me, and their support was vital in getting hammerhead sharks protected in Florida waters.

I was cautiously optimistic that he might maybe be a voice of reason.

Yesterday shattered that.
Reposted by Jijer
Regarding #NIH websites, including #RePORTER, #PubMed, #NCBI, being down:
- This appears to be due to an issue with domain-name lookup. The websites are up, the lookup is (partially) broken
- It could be caused by a denial-of-service attack or a misonfiguration

🧵 with explanation and workaround:
Has there been any evidence if they have access to patient information? I certainly hope not but it definitely wouldn’t surprise me
Ntsb database too, I was looking for a report but the database was down
Reposted by Jijer
Elon Musk has shut down a team of tech-savvy civil servants responsible for developing the IRS’s free tax-filing service and improving government websites. As a result, 90 employees were immediately locked out of their devices and informed that their jobs were deemed non-essential.
My maternal fetal med doctor had this on her desk. As she was googling my rare disease infront of me because she had never heard of it.
Reposted by Jijer
Morgan calls me several times a day, I think she has a crush on me.
Reposted by Jijer
Last night, the chapel facade of Magdalen College was lit up ahead of #RareDiseaseDay.

A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.

📷 | @oxfordpaediatrics.bsky.social
Reposted by Jijer