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Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 16

2025-05-07

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 16

They said it was all in my head. Turns out, they were right—just not in the way they meant. Functional Neurological Disorder (FND) affects how the brain sends signals to the body. It doesn’t show up on scans—but it shows up in our lives, our losses, our daily battles. For anyone still doubting

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 15

She looked straight into the camera… waiting for me to say something. But I wasn’t there.

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 15

Fall into my arms and I will catch you #fnd

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 15

She had no idea where she was… but her dog knew exactly how to bring her home during a functional seizure with preserved motor output.

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 15

I don’t know who needs to hear this…. But there is hope and there are people out here fighting for you.

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 15

Multiple functional drop attacks + dissociative episodes in-store. The rain + sound triggered her. I used grounding (spray + thump) to help bring her back. #FND #SeizureAwareness #FunctionalSeizures

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 14

Rachel has Functional Neurological Disorder. Tonight, her legs stopped working. Our daughter stepped in to help. This is our real life. No filters. #fnd

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 14

This is Functional Neurological Disorder (FND). What you’re seeing is a mix of a functional seizure and a focal impaired awareness episode followed by a drop seizure. Our son has learned to recognize the signs when Rachel starts to fade. He gave her a sharp tap something we learned to help re-sync

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 14

This is what an absence seizure looks like when it turns into something deeper. Rachel was just talking with her friend and me and then everything changed. When I sprayed cold water to ground her, her tic blurted out ‘I hate you.’ She didn’t mean it. But the guilt she felt afterward—that’s what

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 14

She was enjoying life. Then came the seizure. And somehow… she finds her way back to laughter. This is Functional Neurological Disorder. It doesn’t steal her joy it just pauses it. We don’t just cope. We come back stronger. #fnd #invisibleillness #youarenotalone #reallife

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Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 14

Every FND episode is different. We share moments like this to help others understand for awareness and insight not medical advice. #FNDawareness #CaregiverLife #InformationalOnly #RealNotAdvice

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 13

Most people don't see what goes into "stepping away" when you're a caregiver. It's not guilt. It's not fear. It's presence even when you're away. To every caregiver who packs peace in one hand and anxiety in the other you're not alone. #FNDawareness #CaregiverLife

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Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 13

No one’s ever ready for moments like this. Rachel was fine one second smiling, talking… and then it happened. But what makes this one different is what happened after. Our daughter picked up the phone and reminded us that love, even in the hardest moments, still finds its voice. #fndawareness

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 13

Happy Memorial Day weekend!

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 13

FND didn’t erase her—it just asked her to meet herself again. #FNDawareness #FND

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 13

#creatorsearchinsights #FNDawareness #invisibleillness

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 12

FND is exhausting. But explaining it to people who don’t believe you? That’s a trigger too. #fndawareness

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 12

Sometimes silence on this app isn’t about quitting. It’s about being pushed out. Let’s remind the algorithm: we are still here!#fnd #fndawareness

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 12

One second we’re ranking jellybeans in Costco… the next, my wife hits the floor mid-seizure. This is what living with Functional Neurological Disorder actually looks like—raw, unscripted, and somehow still filled with love (and chaos). #fndawareness

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 12

She once ran these stairs effortlessly. Today, climbing them is a monumental victory. Living with Functional Neurological Disorder (FND) has transformed our journey, but not our determination. Every step symbolizes strength, resilience, and hope. Let's shine a light on FND and support each other's

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 12

Breaking the cycle: when a generation of black sheep raise black sheep book club tonight at 8pm est link will be posted in the cycle breakers fb group.

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 12

She was fine minutes before this. Laughing. Living. Being present. But FND doesn’t care about good days. One spike of pain, and her body shut down. She went into a functional seizure right as she sat down—and like always, the first thing she said was “I’m sorry.” Then “I’m fine.” But she’s not

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 11

New support group on facebook Life with FND: strength through Support if you have FND or are a caregiver for someone who does, we can’t wait to see you there #FND

Therealjd.life.with.fnd @jdlifewithfnd.bsky.social · Sep 11

FND is real. What the world calls fake… we call misunderstood. And we wear this truth on our chest. #fnd #fndawareness