Ginny Mason
@ibcresearch1.bsky.social
430 followers 100 following 130 posts
Research advocate for inflammatory & advanced breast cancers. Exec, Director Inflammatory Breast Cancer Research Foundation, the only IBC nonprofit advocating for patients & research for over 25 yrs. www.ibcresearch.org. RN, full0time volunteer
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ibcresearch1.bsky.social
Last yr there was no IBC specific ICD code. It was difficult to obtain accurate numbers of ppl dx with IBC. Thanks to the the #IBCCollaborative, we made that happen! Share this info with your HCP's and don't forget to tell them about the #IBC Diagnostic Scoring Scale as well!
ibcresearch1.bsky.social
www.msn.com/en-us/news/p... Disturbing commentary on a young GOP telegram group chat
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ibcresearch1.bsky.social
October is all about PINK & happy stories. 1/3 of #inflammatorybreastcancer pts are stage 4 at dx, 1/3 develop stage 4, remaining 1/3 are NED/no evidence of disease. Don't ignore stage 4....be there for those whose treatment goes on and on and on. They need your support & help. #stage4needsmore
ibcresearch1.bsky.social
Only 5-10% of breast cancers are hereditary. Most breast cancer is sporadic/random. Get your mammogram and clinical breast exam. Check your breasts for anything that looks 'different'. Look in a mirror...look under the breast. Know your body!! www.ibcresearch.org
ibcresearch1.bsky.social
Breast pain doesn't always mean cancer but symptoms that don't go away within reasonable time or with home care need evaluation by your HCP. Take it seriously & keep pushing for answers. www.ibcresearch.org
ibcresearch1.bsky.social
www.msn.com/en-us/news/p... Poor excuses from Johnson regarding his delay on swearing in new Dem rep.
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ibcresearch1.bsky.social
#Clinicaltrials can be a great option for treatment but it can be tough to find one that includes #IBC patients. Not everyone can travel a distance to find a trial, insurance may not cover other care out of state and it's tough to leave your support system. Things need to CHANGE!
ibcresearch1.bsky.social
Think you're "OK" because you had a negative mammogram? Nothing showed up on my mammogram yet #Inflammatorybreastcancer was growing! Don't rely on a mammogram for #IBC....keep pushing for answers! www.ibcresearch.org
ibcresearch1.bsky.social
www.msn.com/en-us/news/p... The #Project2025 plan exposed...shutdown part of the plan.
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www.msn.com/en-us/news/p... "Morality is not a buffet"....pope's words remind people that #pro-life means taking care of others, no killing, etc.
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www.msn.com/en-us/news/p... The new #BigLie that will help them dismantle the constitution.
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Two amazing women/advocates!! Thanks for being there to #represent @coffeemommy.bsky.social 😍
ibcresearch1.bsky.social
www.msn.com/en-us/news/u... First of all the #Constitution doesn't belong in a Bible (separation of church & state) but omitting amendments 11-27 is significant....abolishing slavery, women vote....
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www.msn.com/en-us/news/p... How to counter #WhiteChristianNationalism by #JimWallis
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www.msn.com/en-us/news/p... Avg family feeling the #tariffs more then they'll feel the #taxcuts.
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www.msn.com/en-us/news/p... So now we're supposed to LIKE living under military rule???? Nope!
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www.msn.com/en-us/news/p... #SupremeCourt bows to #theOrangeOne once again, giving him power to get rid of ppl he doesn't like/want.
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www.msn.com/en-us/health... Just what we need, AI deciding who gets care and who doesn't on #Medicare. Thanks OZ
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ibcresearch1.bsky.social
Whistleblower shared that #socialsecurity info was moved into an unsecure server, available to hackers & others. www.msn.com/en-us/news/u...
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