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Elly Brosius, MS @ellybrosius.bsky.social · 1d

To get the Renegade Research Newsletter which includes events and more, sign up at the website on Home Page or Subscribe Page.
www.renegade-research.org

Renegade Research

Renegade Research is a 501(c)(3) nonprofit. bringing together a dynamic community of patients, caregivers, scientists, and clinicians to drive innovation in healthcare for those with ME/CFS, Long Covi...

www.renegade-research.org

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Elly Brosius, MS @ellybrosius.bsky.social · 1d

More events:
X Space community conversation
Sat Oct 25 for Dysautonomia /POTS Awareness Day / Month
2 pm ET US
&
Volunteer Info Session to learn about us, tosee if want to help
Sat Nov 15 at 12 pm Eastern.

More Info / Registration via our events page
www.renegade-research.org/events-list

Events | Renegade Research

Upcoming Clinician's and Research Roundtables featuring doctors and other practitioners, scientists, deeply familiar with ME/CFS, Long Covid, and/or overlapping conditions including MCAS, EDS/HSD, POT...

www.renegade-research.org

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Elly Brosius, MS @ellybrosius.bsky.social · 1d

If that gets confusing for finding things even with the separate playlist for roundtables, here is the list of event recordings in backwards chronological order on our website
www.renegade-research.org/recordings

Roundtable Recordings | Renegade Research

Renegade Research offers free education webinars called for doctors and other clinicians, researchers, patients, and caregivers about ME, Long Covid, and their comorbidities including EDS/HSD, MCAS, L...

www.renegade-research.org

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Elly Brosius, MS @ellybrosius.bsky.social · 1d

Here is the YouTube Channel
www.youtube.com/@renegaderes...

Renegade Research

Decentralized patient-led research and clinical education. Focused on ME/CFS, Long Covid, and co-morbidities.

www.youtube.com

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Elly Brosius, MS @ellybrosius.bsky.social · 1d

Micro-dosing GLP-1/GIP RA Tx in ME/CFS & Long Covid with
@kaufmanmd.bsky.social @ruhoy.bsky.social &
Tania Dempsey, MD.

2 pm ET USA, Friday, Oct 17, 2025

A Clinician's Roundtable by @renegaderesearch.bsky.social

Recording posted to YouTube soon.

us06web.zoom.us/webinar/regi...
#MedSky

Welcome! You are invited to join a webinar: Clinician's Roundtable: Microdosing GLP-1/GIP Receptor Agonists in MECFS and Long Covid. After registering, you will receive a confirmation email about join...

Presenters Ilene Ruhoy, MD, PhD, David Kaufman, MD Tania Dempsey, MD Drs Ruhoy, Dempsey and Kauffman will be discussing how they are using this medication off label in their respective practices an...

us06web.zoom.us

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Reposted by Elly Brosius, MS

#MEAction NC @meactionnc.bsky.social · 2d

October Meeting Day Today 🗓️
@MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom
Wed. 10/15/25, (3rd Wed every month)
12:30 PM ET USA
We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies.

www.meaction.net/event-detail...

#MEAction North Carolina Support Call | #MEAction

Please join #MEAction North Carolina for our monthly support call on the third Wednesday of the month at 12:30 PM EST. We welcome all people with ME/CFS or Long Covid, along with their caregivers or ...

www.meaction.net

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Reposted by Elly Brosius, MS

Physios For ME @physiosforme.bsky.social · 2d

We've had another study published 🥳

"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"

Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....

Taylor & Francis Online: Peer-reviewed Journals

Search and explore the millions of quality, peer-reviewed journal articles published under the Taylor & Francis, Routledge and Dove Medical Press imprints.

tandfonline.com

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Elly Brosius, MS @ellybrosius.bsky.social · Sep 17

Great group of folks sharing support and info about M.E. and Long COVID and co-morbidities. Validation, Encouragement, Practical Wisdom in plentiful supply.

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Reposted by Elly Brosius, MS

#MEAction NC @meactionnc.bsky.social · Sep 17

Meeting Day Today 🗓️
@MEActNet's North Carolina (NC) Chapter Support SUPPORT Zoom
Wed. 9/17/25, (3rd Wed every month)
12:30 PM ET.
We welcome those near & far with ME/CFS/POTS/OI +/- Long Covid(PASC), & caregivers, family, friends, allies.

www.meactions.org/event-detail...

#MEAction North Carolina Support Call | Me Actions

Please join #MEAction North Carolina for our monthly support call on the third Wednesday of the month at 12:30 PM EST. We welcome all people with ME/CFS or Long Covid, along with their caregivers or ...

www.meactions.org

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Reposted by Elly Brosius, MS

youngEMERG @youngemerg.bsky.social · Sep 10

👋 Meet young EMERG and get to know us!

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#youngEMERG is part of European ME Research Group (EMERG), a network of researchers from across Europe focused on advancing knowledge and understanding in #MECFS.

youngemerg.com/aboutus.shtml

youngemerg.com

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Reposted by Elly Brosius, MS

The Sick Times @thesicktimes.org · Sep 10

The two-day RECOVER-TLC workshop on new #LongCOVID clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times: bit.ly/4giPmAi

A group of masked advocates with Long COVID who attended the RECOVER-TLC workshop on new Long COVID clinical trials

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Elly Brosius, MS @ellybrosius.bsky.social · Sep 8

Live X Space about PEM, crashing, PENE, PESE language. by @renegaderesearch.bsky.social

Has about 80 people on it at the moment.

Monday, Sept 8, at 5pm ET
x.com/RenegadeRes/...

Renegade Research on X: "It's on! Monday, Sept 8, at 5pm ET Join @IsabelRamirezRD @tessfalor @sunsopeningband @Sabrina_Poirier for a community discussion about PEM, PENE, PESE, & crashes. (Link to space in next post) Patients, come & share how you use these terms & talk about your lived experience." / X

It's on! Monday, Sept 8, at 5pm ET Join @IsabelRamirezRD @tessfalor @sunsopeningband @Sabrina_Poirier for a community discussion about PEM, PENE, PESE, & crashes. (Link to space in next post) Patients, come & share how you use these terms & talk about your lived experience.

x.com

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Elly Brosius, MS @ellybrosius.bsky.social · Aug 30

Dr. Hasan Abdallah, MD at The Children's Heart Institute (Herndon, maybe other locations) is great for the young. www.childrensheartinstitute.org/physician/ha...

Hasan Abdallah, MD | Pediatric Cardiologist in NOVA

Dr. Hasan Abdallah is a cardiologist with Children's Heart Institute in NOVA. Call to schedule your appointment with Dr. Abdallah today!

www.childrensheartinstitute.org

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Elly Brosius, MS @ellybrosius.bsky.social · Aug 30

Sometimes we share doctor information on groups.io/g/CFSupport email list.

CFSupport groups.io Group

CFSupport is the e-list of Northern VA Chronic Fatigue Syndrome / M. E., FMS, and Orthostatic Intolerance Support Group. Please join us in seeking help for and offering hope to those with these and ov...

groups.io

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Elly Brosius, MS @ellybrosius.bsky.social · Aug 30

Not sure if Dr. Pocinki taking patients.

drpocinki.com

drpocinki.com

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Reposted by Elly Brosius, MS

emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · Aug 29

Can anyone recommend an #MECFS & #POTS knowledgeable doctor in the DC area?

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Reposted by Elly Brosius, MS

Cort Johnson @cortjohnson.bsky.social · Jun 1

The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM, and Long COVID? #MECFS #FM #longcovid www.healthrising.org/blog/2025/05...

The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM and Long COVID? - Health Rising

GLP-1 agonists like Ozempic could be surprisingly helpful in diseases like chronic fatigue syndrome, fibromyalgia and long COVID.

www.healthrising.org

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Reposted by Elly Brosius, MS

#MEAction NC @meactionnc.bsky.social · Jul 25

This 30+ minute zoom starts in 50 minutes. ME/CFS Program to look at symptoms, treatments, your previous tests, history, genes, and make more sense of it and find targeted aides.

Renegade Research @renegaderesearch.bsky.social · Jul 22

Announcement!!

1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows!

We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC

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Reposted by Elly Brosius, MS

National Association of Letter Carriers @lettercarriers.bsky.social · Jul 24

As NALC President Brian Renfroe testified on Capitol Hill yesterday, no letter carrier should have to fear for their life while serving our communities.

Tell Congress to pass the bipartisan Protect Our Letter Carriers Act: nalc.org/action

www.rawstory.com/amp/usps-267...

‘Devilish’: GOP and Dems ‘astonished’ by surge of mail attacks and thefts

www.rawstory.com

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Reposted by Elly Brosius, MS

European Space Agency @esa.int · Jul 23

🗓️Upcoming launch!

Join us live on 26 July from 02:40 BST/03:40 CEST to watch our Vega-C rocket take flight once again.

#VV27 will carry Airbus's four CO3D satellites and CNES MicroCarb mission.

🚀 Launch is scheduled for 03:03 BST/04:03 CEST.

Watch live: Vega-C to launch CO3D and MicroCarb

www.esa.int

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Elly Brosius, MS @ellybrosius.bsky.social · Jul 22

The link above for the form didn't work for me. This one works:
docs.google.com/forms/d/e/1F...

Renegade Research Coaching Interest Form

Preliminary intake questions for clients interested in Renegade Coaching and Consulting (Note - you can share this form with others who are interested by copying this link: Click for link to share ...

docs.google.com

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Reposted by Elly Brosius, MS

Isabel Ramirez-Burnett @isabelrb.bsky.social · Jul 22

@renegaderesearch.bsky.social medical coaching and consulting for MECFS and Long Covid patients is now open

Renegade Research @renegaderesearch.bsky.social · Jul 22

Announcement!!

1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows!

We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC

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Elly Brosius, MS @ellybrosius.bsky.social · Jul 22

Sign up! Free webinar Fri 7/25 1pET
Community Briefing: Coaching & Consulting Medical Program by @renegaderesearch.bsky.social
10 patients accepted to start. Need your own clinician as well, not all can afford it.
By learning what it is, all may pick up tips. Link:
us06web.zoom.us/webinar/regi...

Square graphic with yellow and orange spheres floating on white and orange background. Text about July 25 Community Briefing by Renegade Research about their New Coaching and Consulting Program for people with ME/CFS and/or Long Covid. Speakers are John Haughton, MD, Isabel Burnett, NBC-HWC, and Kat Boniface, Science Communicator. Time is 1 P Eastern US, 10 AM Pacific US, 6 PM GMT. Text also says it is free and all are welcome. An email address is provided: event@renegade-research.org.

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Reposted by Elly Brosius, MS

Richelle Sepulveda @richellesepulveda.bsky.social · Jul 8

Zooniverse DOES sound amazing!

@renegaderesearch.bsky.social @isabelrb.bsky.social @tessfalor.bsky.social @ellybrosius.bsky.social what do you think of this? Have you heard of it? People-powered research sounds familiar!

Zooniverse share.google/STOhUiY7JKXi...

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