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Reposted

Krystal Tsosie @kstsosie.bsky.social · 1d

Out today via @natgenet.nature.com, the first federally funded #Tribal #data repository, a revolutionary approach to data management and applied/operationalization of IDSov @d4itdr.bsky.social. Also, if you are at #ASHG25, come see us this morning in 205ABC
www.nature.com/articles/s41...

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Reposted

Dana Howard @thedanahoward.bsky.social · 16h

Publication day! So proud to be a small part of this incredible team at @d4itdr.bsky.social. check out what it looks like to build a data repository grounded in #IDSov

A Tribal data repository to advance Indigenous health and sovereignty - Nature Genetics

We present the first federally funded Tribal data repository — the Data for Indigenous Implementations, Interventions, and Innovations Tribal Data Repository. This repository takes a revolutionary app...

www.nature.com

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Reposted

Krystal Tsosie @kstsosie.bsky.social · 1d

For those interested in #Indigenous #Genomics and #ASHG25 in Boston, here are some interested posters/talks/events coming out of the Tsosie Lab, @nativebio.bsky.social, and @d4itdr.bsky.social. For those looking for Friday plans, attend our Ancillary Event, debuting a #Tribal #data repository!

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d4itdr.bsky.social @d4itdr.bsky.social · 15h

This project could not have been possible without the work from our multiple sites collaborating together to uphold and strengthen Indigenous Data Sovereignty. Come read about it here www.nature.com/articles/s41... #Datasovereignty #Indigenous #IDSov #Nativeacademics #Tribal #Data

A Tribal data repository to advance Indigenous health and sovereignty - Nature Genetics

We present the first federally funded Tribal data repository — the Data for Indigenous Implementations, Interventions, and Innovations Tribal Data Repository. This repository takes a revolutionary app...

www.nature.com

d4itdr.bsky.social @d4itdr.bsky.social · 15h

Exciting news!!! Our paper describing our Tribal Data Repository work and its framework has been published today in Nature Genetics! (1/2)

A Tribal data repository to advance Indigenous health and sovereignty - Nature Genetics

We present the first federally funded Tribal data repository — the Data for Indigenous Implementations, Interventions, and Innovations Tribal Data Repository. This repository takes a revolutionary app...

www.nature.com

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d4itdr.bsky.social @d4itdr.bsky.social · 12d

Check out our session tomorrow morning titled “Indigenous Data Sovereignty is very DEMURE, very MINDFUL! Saturday 8:30 am in room 205 A

conference.aises.org/agenda

#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #AISES

Agenda | 2025 AISES National Conference

conference.aises.org

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d4itdr.bsky.social @d4itdr.bsky.social · 19d

Them: You look so happy!

Us: Thanks! We're upholding Indigenous Data Sovereignty!

#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty

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d4itdr.bsky.social @d4itdr.bsky.social · 26d

Ever wonder what IDSov and related topics could look like as a music album?

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Reposted

Krystal Tsosie @kstsosie.bsky.social · 26d

When Indigenous peoples build our own #Tribal #data repositories, we self-direct #health #research & create #education resources to train next-gen of #Indigenous science

From PhD student, Karina Hernandez-Hernandez (P’urhépecha) it is “hope-giving” news.asu.edu/20250917-sci...
@d4itdr.bsky.social

Professor creates 'a safe harbor' for Indigenous data | ASU News

Among Indigenous populations in the U.S., there is a history of personal data being used without consent. Now, a new digital repository hopes to change both who benefits from biomedical data and who g...

news.asu.edu

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d4itdr.bsky.social @d4itdr.bsky.social · Sep 12

We also consulted with Tribal partners to discuss how Tribes can leverage sovereignty to get their data, an ongoing conversation we are always happy to engage in. (2/2)

#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty

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d4itdr.bsky.social @d4itdr.bsky.social · Sep 12

Two weeks ago the D4I team visited the unceded territories of the Coast Salish peoples in the Pacific Northwest Coast. Here our team discussed data sovereignty with the Urban Indian Health Institute director, Abigail Echo Hawk. (1/2)

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d4itdr.bsky.social @d4itdr.bsky.social · Sep 10

We uphold Indigenous Data Sovereignty in our repository work youtu.be/twp6lABlTM8?...

#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty

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d4itdr.bsky.social @d4itdr.bsky.social · Sep 8

#DataSovereignty #Indigenous #IDSov #Tribal #Conference #ASHG2025 #ASHG

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d4itdr.bsky.social @d4itdr.bsky.social · Sep 8

If you are attending the ASHG Annual Meeting in Boston this year, and you would like to hear about advances in Indigenous digital sovereignty and Tribal Nation-led health research, please sign up for our limited seating engagement on Friday, Oct 17th. Lunch provided: tinyurl.com/5aj9544f

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d4itdr.bsky.social @d4itdr.bsky.social · Sep 3

Have you ever thought about what Tribal derived data is and the big questions surrounding its use? youtu.be/twp6lABlTM8?...

#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 29

Do you have any questions or thoughts about our work? Feel free to contact us at [email protected]

#DataSovereignty #Indigenous #IDSov #Tribal #Data

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

#DataSovereignty #Indigenous #IDSov #Tribal #Data #CDE #definitions (3/3)

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

CDEs provide a way to standardize collected data, ensuring the type & format of data are consistent across projects/sites/studies/trials. This approach minimizes variability between studies. Reusing this data helps future studies & reduce research costs. Learn more at cde.nlm.nih.gov/home (2/3)

NIH Common Data Elements (CDE) Repository

Repository of Common Data Elements (CDE) and Protocol Forms. Search CDEs. Search Protocol Forms.

cde.nlm.nih.gov

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

What is a Common Data Element (CDE)? And why do we care about them?

CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 15

Come check out our website! d4itdr.org/were-in-our-...

We’re in our IDSov Era: Explore Our New Video Resources on Indigenous Data Sovereignty | D4I Tribal Data Repository

d4itdr.org

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 13

Are you an educator? Want to teach about data sovereignty? Look no further, we have an educational video series explaining several topics of Indigenous Data Sovereignty! youtube.com/@d4itdr?feat...

#EducationVideos #DataSovereignty #NativeEducators #Indigenous #IDSov

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 1

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty #Contracts (2/2)

d4itdr.bsky.social @d4itdr.bsky.social · Aug 1

This video provides an intro to data transfer, ownership, and use agreements (DTOUA) as one way to form mutually respectful collaborations with Tribal Nations that recognizes their legal authority, autonomy, and sovereignty to self-direct research partnerships with Tribal citizens in research (1/2)

D4I Tribal Data Repository - Research Contracts and Partnerships with Tribal Nations

YouTube video by D4I TDR

youtu.be

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d4itdr.bsky.social @d4itdr.bsky.social · Jul 31

Dynamic consent can promote Tribal sovereignty, this video provides an overview of different informed consent types. youtu.be/_4j8kKh4Zjc?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty #Consent

D4I Tribal Data Repository - Informed, Broad, and Dynamic Consent in Indigenous Based Research

YouTube video by D4I TDR

youtu.be

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d4itdr.bsky.social @d4itdr.bsky.social · Jul 30

When looking for data management solutions, Tribes can consider different models. In this video, D4I provides summaries of decentralized, federated, and centralized data systems. youtu.be/RNvNqoAXSGo?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty

D4I Tribal Data Repository - How Data Sharing Systems Work

YouTube video by D4I TDR

youtu.be

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