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Colostomy UK

@colostomyuk.bsky.social

47 followers 13 following 240 posts

Charity that SUPPORTS and EMPOWERS people living with a #stoma. Your voice on the bigger issues; campaigning, & running projects. #StomaAware www.ColostomyUK.org

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Colostomy UK @colostomyuk.bsky.social · Sep 3

We need YOUR help this October! Host a Coffee Morning for Colostomy UK. Just one cuppa could help someone access the emotional support, practical advice, or reassurance they desperately need. 🍵💜

Sign up and make every sip count: www.colostomyuk.org/get-involved...

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Colostomy UK @colostomyuk.bsky.social · 7h

Are you struggling with a high-output stoma?

Changes in output are common, but too much can be challenging to deal with daily. The article below talks about some of the causes and what might help to reduce it 💜

http://ow.ly/agtV50OtwGP

#stoma101 #Stoma #StomaAware

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Colostomy UK @colostomyuk.bsky.social · 1d

After the tears came the research. Instagram led me to Colostomy UK and I learned a stoma doesn’t define you.”

Read Alexandra’s story: https://ow.ly/7eXQ50XaojN

#Stoma #StomaAware #ColostomyUK

17th September 2025, a date I’ll never forget. The day the world stopped spinning quite the same way. The day I heard those dreaded words: “You have cancer.”
Hi, I’m Alexandra, a 28-year-old girl from London who, until recently, was living what I’d call my best life. I have an amazing fiancé who loves me unconditionally, a job that I genuinely adore, a beautiful and supportive family, and the kind of friends who make every day brighter. Life was good, really good.

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Colostomy UK @colostomyuk.bsky.social · 1d

Huge congrats to Gill Skipper—Stoma Nurse of the Year at #ASCN! 👏💜👏 So well deserved for her dedication, compassion, and tireless support for people living with a stoma—changing lives every day. #ASCNUK #ASCN #Stoma #Colostomy #Urostomy #Ileostomy #ColostomyUK

Huge congratulations to Gill Skipper, awarded Stoma Nurse of the Year at #ASCN conference 👏💜👏
So well deserved for her incredible dedication, compassion, and tireless work supporting people living with a stoma, changing lives every single day.

#ASCNUK #ASCN #Stoma #Colostomy #Urostomy #Ileostomy #ColostomyUK

Colostomy UK @colostomyuk.bsky.social · 1d

Having a clear out? Donate your unwanted clothes & household items to raise funds for Colostomy UK 💜

Free collection via @icollect_clothes
0344 879 4417
www.icollectclothes.co.uk

icollect - donate your unwanted items with our free collection service from your doorstep

Colostomy UK @colostomyuk.bsky.social · 1d

Great to catch up with our friends and proud sponsors of #teamcolostomyuk, CUI WEAR at ASCN 💜
Thank you for your incredible support throughout the year, we couldn’t do it without you!

#ASCNUK #Stoma #Colostomy #Urostomy #Ileostomy #ColostomyUK

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Colostomy UK @colostomyuk.bsky.social · 2d

Join us on 22 Oct for Healthy Bonds — a live event on stoma care, cancer recovery & clinical insights.

🎤Expert speakers + real stories
🕕18.00–20.00 BST | 💬Live Q&A
🔗Register: https://bit.ly/4q9i1wi

With @ColostomyUK @IASupport @UrostomyAssn @BCWcharity

Colostomy UK @colostomyuk.bsky.social · 2d

Powerful insight from Matt Forde & his Stoma Care Nurse Breege
Their fireside chat shone a light on how trust, empathy & teamwork shape every stoma journey.

#ASCNUK #Stoma #Colostomy #Urostomy #Ileostomy #ColostomyUK

Colostomy UK @colostomyuk.bsky.social · 2d

Got a lumpy #stoma? It could be a granuloma—red, raised, and sometimes painful. It can also affect bag adhesion.

🔗 Learn more + treatment tips: colostomyuk.org/information/...

#Stoma101 #stotma #stomaaware

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Colostomy UK @colostomyuk.bsky.social · 3d

Do you find time with your Stoma Nurse limited? It can be easy to forget to report something when you're do see them.

In the link below Stoma care nurse Jackie McPhail talks you through the 'PQRSTU' Assessment, to help you report pain.

https://ow.ly/8FMP50TqIV1

#Stoma101 #Stoma

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Colostomy UK @colostomyuk.bsky.social · 3d

Liverpool ONE Introduces Stoma-Friendly Toilets as Part of Five New Accessibility Initiatives for #PurpleTuesday

“Simple changes give people dignity, independence and peace of mind.” Read more: https://ow.ly/4vi150X9BVk

#Stoma #StomaAware #ColostomyUK

Liverpool ONE Introduces Stoma-Friendly Toilets as Part of Five New Accessibility Initiatives for #PurpleTuesday

“Having access to stoma-friendly toilets can make the difference between someone with a stoma feeling confident to go out and enjoy life or staying at home through fear and anxiety.”

Read more: https://www.colostomyuk.org/liverpool-one-introduces-stoma-friendly-toilets-as-part-of-five-new-accessibility-initiatives-for-purple-tuesday/

#Stoma #StomaAware #ColostomyUK

Colostomy UK @colostomyuk.bsky.social · 3d

Keep cosy this autumn with our Colostomy UK hoodies stylish, comfy & with a splash of purple

Perfect for everyday wear, and every purchase supports our #ActiveOstomates campaign
Grab yours: https://colostomyuk.bigcartel.com/product/team-colostomy-uk-rugby-league-hooded-sweatshirt #Stoma #StomaAware

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Colostomy UK @colostomyuk.bsky.social · 4d

Association of Stoma Care Nurses (ASCN) UK Annual Conference 2025 starts tomorrow!

📍 Stand I36 | 📅 Oct 12–14
Meet our amazing team + volunteer Debs

Come say hi, connect, and learn more https://conference.ascnuk.org/ascnuk25-exhibitors/

#ASCNUK #Stoma #Colostomy #Urostomy #Ileostomy #ColostomyUK

We’re excited to be part of the ASCN UK Annual Conference 2025!

Come and visit us at Stand: I 36 to chat with our dedicated team and meet one of our incredible volunteers, Debs!

Date: Oct 12th - 14th

Come and see us at our stand — scan the QR code below to find out more about the event and how you can get involved!

Learn more here: https://conference.ascnuk.org/ascnuk25-exhibitors/

#ASCNUK #Stoma #Colostomy #Urostomy #Ileostomy #ColostomyUK

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Colostomy UK @colostomyuk.bsky.social · 4d

Do you experience blockages? if so, unfortunately you're not alone.

It's one of the top-viewed pages on our website.

Check out our guidance for lots of hints and tips to help you. https://www.colostomyuk.org/information/stoma-problems/stoma-blockage/

#stoma #stomaaware

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Colostomy UK @colostomyuk.bsky.social · 4d

You could win the cost of your next holiday with the Colostomy UK Lottery! ✈️👙
£25,000 jackpot & weekly cash prizes! Just £1 to enter & 50p goes directly to us.

Play now & support our work https://ow.ly/JQZi50WnBCA

Every week you have the chance to win the £25,000 lottery jackpot, plus many other fantastic cash prizes, whilst also supporting us!

Colostomy UK @colostomyuk.bsky.social · 5d

This World Mental Health Day highlights the need for access to support in times of crisis. For people with a stoma, challenges like stigma, isolation & anxiety can be just as significant as the physical ones.

Be #StomaAware. Support is here: 0800 328 4257

How can we make mental health a priority for all?

This World Mental Health Day 2025 highlights the need for access to support in times of crisis. Everyone deserves the right to protect their mental wellbeing.

For people living with a stoma, challenges like isolation, stigma, and anxiety can be just as significant as the physical ones. That’s why we’re working to make mental wellbeing a vital part of living well with a stoma.

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Colostomy UK @colostomyuk.bsky.social · 5d

We’re on a mission to make stomas better understood, reduce stigma, and support those living with them.

Our #StomaAware campaign is packed with initiatives to drive change.
Find out more and get involved https://www.colostomyuk.org/campaigns/

#stoma #colostomy #urostomy #ileostomy #stomaaware

We want stomas to be understood by everyone, removing stigma and making life easier for people living with stomas.

Our #StomaAware campaign has a number of different initiatives to help achieve this goal 🙌

Find out more and get involved https://www.colostomyuk.org/campaigns/

Or encourage your friends and family to be #StomaAware, by sharing this post!

#stoma #colostomy #urostomy #ileostomy

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Colostomy UK @colostomyuk.bsky.social · 6d

So proud of Katie Thirling — just 9 years old and already a British Citizen Youth Award winner! Breaking stigma and inspiring others. #StomaMythBusters #StomaAware #Stoma Read more: https://www.colostomyuk.org/leeds-girl-honoured-with-prestigious-national-award-for-inspiring-advocacy-work/

Colostomy UK @colostomyuk.bsky.social · 6d

Thinking about getting back in the pool after #stoma surgery? Worried about leaks, your bag coming off, or just lacking confidence?

Check out this guide by British para-swimmer Tasha Critchley: ow.ly/bJPJ50PhWAj 🏊‍♀️💜

#StomaLife #StomaSupport #SwimmingWithAStoma

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Colostomy UK @colostomyuk.bsky.social · 7d

Worried about how your stoma might affect your current or future relationships?

You're not alone—and while your stoma care nurse can help, we know it’s a tough topic to open up about. 💜

Explore guidance and support here: ow.ly/HyQT50WyEWG

#Stoma101 #stoma #stomaaware

Colostomy UK @colostomyuk.bsky.social · 8d

Real stories. Real strength. Real connection.
This free virtual event from Convatec is all about you.

Hear real stories from 5 people living with a stoma at Convatec’s free virtual event — full of honesty, strength & connection.
9 Oct | 17:00 BST
Sign up: https://brnw.ch/21wVURR

Real stories. Real strength. Real connection.
This free virtual event from Convatec is all about you.

Hear from five people living with a stoma as they share honest, uplifting stories that will make you feel seen, understood, and inspired. Whether you’re new to this journey or have been living with an stoma for years, you’ll walk away with:

• A sense of community
• Emotional support through shared experiences
• Encouragement to keep moving forward

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Colostomy UK @colostomyuk.bsky.social · 8d

At the weekend, Stoma Aware Day smashed myths & built awareness ☕💜

Help us go further! This October, host a Coffee Morning for Colostomy UK & help create a more #StomaAware community.

Sign up today 👉 https://www.colostomyuk.org/get-involved/cukcoffeemorning/

#StomaMythbusters #StomaAware

Colostomy UK @colostomyuk.bsky.social · 9d

We’re at the ASCN UK Annual Conference 2025! 🎉

📍 Stand I36 | 📅 Oct 12–14
Meet our amazing team + volunteer Debs 💜

Come say hi, connect, and learn more: conference.ascnuk.org/ascnuk25-exh...

#ASCNUK #Stoma #Colostomy #Urostomy #Ileostomy #ColostomyUK

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Colostomy UK @colostomyuk.bsky.social · 11d

Exeter City FC is leading the way in accessibility! Working with us, they’ve upgraded their toilets to be stoma-friendly — showing real commitment to inclusion and dignity for all fans.
Read more: https://ow.ly/tyEE50X6ACj

#StomaAware #Stoma

Exeter City champions accessibility with new stoma-friendly facilities!

Exeter City Football Club has been working with us to upgrade all of its toilet facilities, to ensure they are stoma friendly – a sign of its ongoing commitment to inclusivity and accessibility.

Read more: https://www.colostomyuk.org/exeter-city-champions-accessibility-with-new-stoma-friendly-facilities/

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Colostomy UK @colostomyuk.bsky.social · 11d

Today is #StomaAware Day
Every myth we bust = more understanding, confidence + dignity for people with a stoma.

Join us. Share your story. Be a #StomaMythbuster www.colostomyuk.org/campaigns/st...

#StomaAware #StomaMythbuster

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Colostomy UK @colostomyuk.bsky.social · 11d

"She might be small but her voice is loud"

Katie's amazing story on the eve of #StomaAware day

www.itv.com/watch/news/l...