Child Growth Foundation
@childgrowthuk.bsky.social
28 followers 52 following 340 posts
UK charity making a difference wherever growth is a concern.
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During Dwarfism Awareness Month we're sharing this fab resource from Little People UK, with facts, dos and don'ts, terminology and more 💙

#DwarfismAwarenessDwarfismAwarenessMonth" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#DwarfismAwarenessMonth #DwarfismAwareness
Share yours or your loved ones uniqueness and help us support those affected by #Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome by completing this short form forms.office.com/e/s7fFCHgQLZ

#Sotos

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We are in the final stages of producing our new information booklet on Sotos syndrome. Can you help us by sharing your words and experiences of #Sotosf="/hashtag/SotosSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#SotosSyndrome? forms.office.com/e/s7fFCHgQLZ

We are looking for short, positive quotes about Sotos syndrome to include in this new booklet.

#Sotos

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Thanks so much to Tilly who's been running in support of the CGF, with over £700 raised!

Tilly has taken on the Monikie 10k and Dundee Half Marathon with friend Joanna, and the Dundee Kiltwalk
with friend Evelyn - amazing fundraising all of you 💙

justgiving.com/team/tiilyandjoannarunningforgrowth
🐠 Free SEALIFE Manchester ticket opportunity for eligible families this November 🦈

Our next Meet Up is taking place at SEALIFE Manchester thanks to Merlin’s Magic Wand 🪄 and you can apply for free tickets join us, here: childgrowthfoundation.org/sealife
Whichever part of your routine you and your child would be willing to share. Faces do not need to be included in the video/photos.

If you can get involved please email us at [email protected] - thank you!

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It could be you or your child chatting about what your routine is, video footage and/or photos of having the injection, a child injecting themselves, or even them receiving their treat at the end.

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To help them, we would love to create a short video showing supporters of the CGF talking about their experiences of doing daily or weekly injections and showing how you do your injection. Would you be willing to help us by filming some short footage?

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Often families just starting growth hormone treatment contact the CGF for support, keen to know how best to introduce this new normal to their child.

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Good luck to the amazing team CGF runners taking on today's #RoyalParksHalf to raise funds for our charity - incredible!

Thank you so much from us all at the CGF for your support of the child growth community 💙

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"My son has Sotos syndrome, and I am forever grateful to the CGF for the information, support and guidance, it has offered my family over the years. Running 13 miles through some pretty parks is the least I can do!"

www.justgiving.com/fundraising/anthonyleyton-thomas

#RoyalParksHalf

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"I’m really excited to be lacing up my running shoes again for the CGF. As a trustee, I see first-hand the amazing initiatives and services our fundraising supports, and I know exactly how important these donations are is to ensure our charity can keep changing lives and making a difference."

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Ahead of tomorrow's Royal Parks Half Marathon, we're spotlighting our fantastic team of five runners taking on this challenge to raise funds for our charity, for which we're HUGELY grateful!

Last and by no means least we are spotlighting CGF trustee Anthony Leyton-Thomas ✨

#RoyalParksHalf

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This year our children have really benefitted from meeting children across the country who also have daily injections. They even took part in a special trip to Legoland with other members of the charity."

www.justgiving.com/page/going-for-growth

#RoyalParksHalf

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"Our family are members of this great charity that aims to raise public awareness of growth disorders and provide support to kids like our children who have been diagnosed with Growth Hormone Deficiency (GHD) and will need daily injections until they finish puberty.

#RoyalParksHalf

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Ahead of this Sunday's Royal Parks Half Marathon, we're spotlighting our fantastic team of five runners taking on this challenge to raise funds for our charity, for which we're HUGELY grateful!

Today we are spotlighting Liam Russell 🌟

#RoyalParksHalf

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This page features information about mental health, tips to look after emotional wellbeing, and signposting to expert organisations and charities like Mind mind.org.uk and specialist mental health support for children and young people like YoungMinds youngminds.org.uk

#WorldMentalHealthDay

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This new page: childgrowthfoundation.org/mental-health, created with valued input from a Clinical Psychologist, is designed to support your own mental health and wellbeing, along with the mental health and wellbeing of your child/young person.

#WorldMentalHealthDay

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It's World Mental Health Day, an important annual global awareness day to recognise and celebrate the importance of everyone's mental health and wellbeing.

We have launched a dedicated mental health and emotional wellbeing page 👉 childgrowthfoundation.org/mental-health

#WorldMentalHealthDay

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"Their continued support, guidance and reassurance has been invaluable as our 4 year old son William bravely began his growth hormone journey."

www.justgiving.com/page/james-sturgess-1

#RoyalParksHalf

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"I’m delighted to be supporting the CGF as I prepare to take part in the 2025 Royal Parks Half. Training is well underway and feeling as prepared as I can! A great opportunity for us as a family to give back to the amazing team at the CGF."

#RoyalParksHalf

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Ahead of this Sunday's Royal Parks Half Marathon, we're spotlighting our fantastic team of five runners taking on this challenge to raise funds for our charity, for which we're HUGELY grateful!

Today we are spotlighting James Sturgess 💫

#RoyalParksHalf

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"The Royal Parks Half Marathon is one of the few London Half Marathons which I have never done before, so I am looking forward to this challenge! 😁"

www.justgiving.com/page/runandy

#RoyalParksHalf

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"CGF is a worthwhile charity, and is a charity which I have not fundraised and run for. It's dedication to supporting adults, children and families that are affected by rare growth conditions is good reason to support them."

#RoyalParksHalf

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