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Anna Jewitt @annajewitt.bsky.social · Apr 25

We had an amazing day @greatormondst.bsky.social on #undiagnosedchildrensday raising awareness of SWAN CYP and their families alongside @roalddahl.bsky.social, @swanuk.bsky.social. Enjoyed the collaboration of NHS and charities so we can all achieve our main aim of supporting more families.

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Anna Jewitt @annajewitt.bsky.social · Apr 25

Thanks so much Becks. That is all so true.
Happy #Undiagnosedchildrenday

Becks Daniels BEM @becksbdaniels.bsky.social · Apr 24

A fabulous #CYPnurse role -working with CYP who have Syndrome Without A Name (SWAN).

When families can't get a diagnosis, it makes the navigation of the CYP health journey challenging. SWAN #CYPnurse join the dots, hold a hand, navigate & simply understand the challenge ❤️
@ellendukecyp.bsky.social

Anna Jewitt @annajewitt.bsky.social · Apr 24

We are very excited to be celebrating #undiagnosedchildrensday 2025 @GOSH with @roalddahl.bsky.social, @swanuk.bsky.social & @spreadasmile to raise awareness of this group of patients & offer more support to families of SWAN children/young people @wendydjones.bsky.social @becksbdaniels.bsky.social

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Anna Jewitt @annajewitt.bsky.social · Apr 24

Very happy to have a stand @greatormondst.bsky.social tm to celebrate #undiagnosedchildrensday, raise awareness & understanding of SWAN patients, raise the profile of the SWAN #CNS role @gosh and support more families @geneticallianceuk.bsky.social @wendydjones.bsky.social

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Anna Jewitt @annajewitt.bsky.social · Apr 24

We are very excited to be celebrating #undiagnosedchildrensday 2025 @GOSH with @roalddahl.bsky.social, @swanuk.bsky.social & @spreadasmile to raise awareness of this group of patients & offer more support to families of SWAN children/young people @wendydjones.bsky.social @becksbdaniels.bsky.social

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